(no subject)
I am trying so unbelievably hard to get my head wrapped around all the health stuff and their consequences. It has been particularly arduous since it changes every freaking day. It has been a roller coaster of emotion, frustration and exhaustion.
Yesterday, I get a call from Dr Asshat's office. The PAC wanted to infrom me of tests results. Ok, i thought we had already done that, but whatever. In a very somber tone she informed me of high enzymes, elevated ammonia levels, low prothrombin, AFP up again to 17. All of these would explain my status.
Well, REEEEEEally. no shit.
Then, they were still waiting the results of MRI.
Interesting since I got a call LAST FRIDAY from Dr. T at UC telling me it was negative.
dammit people.
Oh, and she said I could take B12 to help my energy levels.
What article of science did you draw THAT infromation from, idiot....?
Thankfully, Dr T called last night too, and once he determined that all of the numbers had seen a steady progression, not a sudden phenomenon, he wasn't as concerned. After all, it is 'progressive liver disease'. We know I am well past the regenerative phase. Now it's cuddle and talk nice to the liver so it will behave as long as possible.
So, I see him on the 7th and we will revisit the Interferon chemo drug again. I am not thrilled to start that again, but it is clear, despite the negative study results, that it was slowing the progression for me. If our insurance will cover it - it's to the tune of about $1800 a month, I will most likely start it mid-January.
The up and down of this is so stressful. I ger myself adjusted to one thing, then something else pops up. I've decided I'm not even going to TALK to the local gastro office. I may not even call to cancel the appt on the 3rd. I may just not show up as a spiteful act against them.
Dr. Asshat DID keep me waiting 2 hours for that last awful experience.
So pfft to you.
( no, i will call....stupid conscience anyway)
*let me add to this that if there is ANY good in me right now, it comes from Christ. I surrendered - i can not do any of this by myself anymore.
Yesterday, I get a call from Dr Asshat's office. The PAC wanted to infrom me of tests results. Ok, i thought we had already done that, but whatever. In a very somber tone she informed me of high enzymes, elevated ammonia levels, low prothrombin, AFP up again to 17. All of these would explain my status.
Well, REEEEEEally. no shit.
Then, they were still waiting the results of MRI.
Interesting since I got a call LAST FRIDAY from Dr. T at UC telling me it was negative.
dammit people.
Oh, and she said I could take B12 to help my energy levels.
What article of science did you draw THAT infromation from, idiot....?
Thankfully, Dr T called last night too, and once he determined that all of the numbers had seen a steady progression, not a sudden phenomenon, he wasn't as concerned. After all, it is 'progressive liver disease'. We know I am well past the regenerative phase. Now it's cuddle and talk nice to the liver so it will behave as long as possible.
So, I see him on the 7th and we will revisit the Interferon chemo drug again. I am not thrilled to start that again, but it is clear, despite the negative study results, that it was slowing the progression for me. If our insurance will cover it - it's to the tune of about $1800 a month, I will most likely start it mid-January.
The up and down of this is so stressful. I ger myself adjusted to one thing, then something else pops up. I've decided I'm not even going to TALK to the local gastro office. I may not even call to cancel the appt on the 3rd. I may just not show up as a spiteful act against them.
Dr. Asshat DID keep me waiting 2 hours for that last awful experience.
So pfft to you.
( no, i will call....stupid conscience anyway)
*let me add to this that if there is ANY good in me right now, it comes from Christ. I surrendered - i can not do any of this by myself anymore.