Well I said it though more likely fell on deaf ears
I finally had my say at the EIBI meeting today. I told them I'm tired of their patronizing remarks and start talking to me as an adult, not a mindless git. That I'm not looking at the world through rose-coloured glasses, I'm trying to be realistic and being spoken to like a child doesn't help me. They kept repeating early intervention is the key with autism and things are looking bright.
If EI is supposed to be the key, then someone forgot to inform the powers that be a small boy has fallen through the cracks and left so far behind it's almost too late. 5 years of nothing, no support other than speech therapy doesn't make one's prospect bright. I hate the thought of having to do this (little or no support) all over again. Especially now the boy is about to start school in September.
I then told them, it nice that there are people who've worked in this field, but unless you have a child that has an LD then they really don't know what it's like. Because after they've finished for the day, the get into their lil cars, drive away and don't have to worry about the child's problem until the next session. It's families of children who have various LD's that must deal 24-7-365. That's when the inclusionist spoke up and said she knew what I was going through since she also has a child with an LD.
I then expressed the fact I wasn't trying to be rude, but I'm tired of people assuming that just because my child has an LD, he doesn't deserve an education as everyone else, that he's nothing more than a label, etc... Surprisingly enough, no one at today's meeting took offence to what I had to say.
It's so damn frustrating. I'm trying like hell to get help and decent therapy for the boy I feel as if I've been thrown into a brick wall face first.
If EI is supposed to be the key, then someone forgot to inform the powers that be a small boy has fallen through the cracks and left so far behind it's almost too late. 5 years of nothing, no support other than speech therapy doesn't make one's prospect bright. I hate the thought of having to do this (little or no support) all over again. Especially now the boy is about to start school in September.
I then told them, it nice that there are people who've worked in this field, but unless you have a child that has an LD then they really don't know what it's like. Because after they've finished for the day, the get into their lil cars, drive away and don't have to worry about the child's problem until the next session. It's families of children who have various LD's that must deal 24-7-365. That's when the inclusionist spoke up and said she knew what I was going through since she also has a child with an LD.
I then expressed the fact I wasn't trying to be rude, but I'm tired of people assuming that just because my child has an LD, he doesn't deserve an education as everyone else, that he's nothing more than a label, etc... Surprisingly enough, no one at today's meeting took offence to what I had to say.
It's so damn frustrating. I'm trying like hell to get help and decent therapy for the boy I feel as if I've been thrown into a brick wall face first.