Special delivery
On the plus side, his blood work numbers continue to improve. His platelet numbers are now normal at 154. Woo hoo!!! Fibrinogen is higher too though below normal at 172, but he uses fibrinogen to clot off the tumor, so that doesn't bother me.
However mostly being at the hospital made my head hurt. We arrived at the hospital at around 10 and didn't leave until almost 3. We have a tough decision to make -- whether to give Little T radiation therapy or not. C and I have talked about it a lot and we haven't reached a decision. That will take some time. We don't disagree. It's just that right thing to do is so very far from clear. I find I've spent so much time thinking and talking about the pros and cons that I'm afraid I don't want to rehash it right now. Suffice it to say that as usual, there is no usual. We'll have to decide this on our own with little data, because he's such a rare case and his case has already broken what happens in most of the few cases. I hope that make sense.
However in a case of brilliant timing, half an hour after we got back, the mail carrier rang the door bell. She dropped a special delivery all the way from Holland! frumiousb sent us a care package full of things. We're saving some things for later. But what we saw so far was a postcard from Holland complete with windmill and a kind message. Two cartons of Droste pastilles (yum!), a wooden tulip bookmark and some paper napkins. When Special K saw the napkins, she just lit up. Moments before I got the package, she had been sitting in the car crying. But she waved the napkins in the air and asked if she could use them for supper. Then I spent 20 minutes with her wrapping the napkins in a tea towel. I'd say "Here's your present!" She would unwrap the napkins and then shout "Napkins!" Repeat until Mummy gets really sick of the game.
Thanks so very much frumiousb you really brightened Special K's and my day!! It was so very sweet. I'm touched.
However mostly being at the hospital made my head hurt. We arrived at the hospital at around 10 and didn't leave until almost 3. We have a tough decision to make -- whether to give Little T radiation therapy or not. C and I have talked about it a lot and we haven't reached a decision. That will take some time. We don't disagree. It's just that right thing to do is so very far from clear. I find I've spent so much time thinking and talking about the pros and cons that I'm afraid I don't want to rehash it right now. Suffice it to say that as usual, there is no usual. We'll have to decide this on our own with little data, because he's such a rare case and his case has already broken what happens in most of the few cases. I hope that make sense.
However in a case of brilliant timing, half an hour after we got back, the mail carrier rang the door bell. She dropped a special delivery all the way from Holland! frumiousb sent us a care package full of things. We're saving some things for later. But what we saw so far was a postcard from Holland complete with windmill and a kind message. Two cartons of Droste pastilles (yum!), a wooden tulip bookmark and some paper napkins. When Special K saw the napkins, she just lit up. Moments before I got the package, she had been sitting in the car crying. But she waved the napkins in the air and asked if she could use them for supper. Then I spent 20 minutes with her wrapping the napkins in a tea towel. I'd say "Here's your present!" She would unwrap the napkins and then shout "Napkins!" Repeat until Mummy gets really sick of the game.
Thanks so very much frumiousb you really brightened Special K's and my day!! It was so very sweet. I'm touched.