Help/advice please if possible
Yes - I am still alive but just been hibernating.
A girlfriend of mine called me last night to tell me her 10 year old daughter has Langerhans' Cell Histiocytosis. It's not exactly cancer but is treated in the same fashion. She's having chemo atm (luckily it's a low dosage) but is currently confined to a wheelchair.
Her mum's been told that under 5 ( Read more... )
Sorry for your friend and what she goes through. I agree with one of the commenters before who said the kid comes to terms with it more easily than the family. Kids don't think of death. They are so full of life. And usually that makes for a better recovery.
Not to leave the healthy one out is one of the main problems, really. And not to loose yourself in the process. The suggestions above are all very good and better than I could formulate them. Taking time, taking help (very important! Let people do the small tasks for you!)
I know that in Germany nearly every cancer treatment center has an advisory center for relatives and firends. Professional people who deal with this every day can give hints of how to make life easier in those times. Take them up on it. I can't understand why some people I know refuse to get that free help and make their lives a mess instead.
Since I haven't been in close touch with a sick kid or their parents, that's about all I can give you from a distance, except *hugs* and best wishes to the family in touble.
Have you thought about asking the renun list? There might be suggestions there.
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