SMA fundraiser
As I've mentioned here before, in June our son was diagnosed with Spinal Muscular Atrophy, a degenerative recessive genetic condition. There's no cure, and not even a treatment beyond physical therapy (which can keep the muscles strong but can't address the underlying failure of the motor neurons). Federal policy currently forbids federal grant money going into some of the most promising research in the stem cell area, and in general federal grant money "only" accounts for 28% of all medical research in this country. The rest is divided between for-profit research (generally strictly internal to a given company) and non-profit grants.
Families of SMA is one of the largest of these non-profits, and on Sunday morning, November 1, the three of us and a rapidly growing cohort of friends and supporters will be participating in a "walk 'n' roll" in Dracut, MA. We'd love for anybody who can to join us, and to get pledges and donations from all who are able.
We have our own pledge page which you can use to donate, or you can register to walk with us. So far we have about 35 adults and 18 kids under the age of 6 in "Mac's Pack", and we are getting shirts made up.
We'd love to see any or all of you there, and greatly appreciate your support. Thank you.
Families of SMA is one of the largest of these non-profits, and on Sunday morning, November 1, the three of us and a rapidly growing cohort of friends and supporters will be participating in a "walk 'n' roll" in Dracut, MA. We'd love for anybody who can to join us, and to get pledges and donations from all who are able.
We have our own pledge page which you can use to donate, or you can register to walk with us. So far we have about 35 adults and 18 kids under the age of 6 in "Mac's Pack", and we are getting shirts made up.
We'd love to see any or all of you there, and greatly appreciate your support. Thank you.