I found this story today and thought about my situation and
alicia_stardust and
dragon_mintz. None of us has lupus but we all have syndromes that are largely invisible to people who don't know us. You can substitute any one of a number of "symptoms" of our syndroms for fever, or bruises and the analogy still works. The only thing I'd add is that the only way to get more spoons is rest or sleep. Often hard to come by. I know that my situation could be a lot worse, but that doesn't actually make it any easier to live with.
Spoons