Stages
I've been in and out of writing- deleting sentence after sentence and flipping the structures on their head only to wipe the slate clean near completion. It's a rather odd head space I'm sitting in.
Matthew's surgery went well a few weeks back. The initial report was that all of the tumor was out and they were running a biopsy test to determine it's make. And so Matthew recovered well with little, if any, set backs. He was tired but his soul pushed him forward and only after a few days he was running around and playing with him brother.
The other night I received an email from my father. The biopsy had come back. And it was the worst news we could have had- Glioma with the WHO grade between 3 and 4. Most grade 3 patients have a life expectancy of 2 - 3 years. Grade 4's rarely, if ever, making it past a year. Some have, but are in a constant battle.
There is no cure for any of this. A high-grade Glioma is top of the line, the worst possibility pathology-wise. And the current plans have Matty on 25-30 targeted radiation sessions with simultaneous chemotherapy. The only good news is the Glimo seems to be missing a pair of Monsomy 7 (a common chromosome within Gliomas making them resistant to beam radiation). Without this, the doctors are hoping it'll be more susceptible to the treatment plan.
I can't imagine being 5 6 years old and going through all of this.
Note: Matt had his 6th birthday within the hospital while recovering from the inital surgery.
Matthew's surgery went well a few weeks back. The initial report was that all of the tumor was out and they were running a biopsy test to determine it's make. And so Matthew recovered well with little, if any, set backs. He was tired but his soul pushed him forward and only after a few days he was running around and playing with him brother.
The other night I received an email from my father. The biopsy had come back. And it was the worst news we could have had- Glioma with the WHO grade between 3 and 4. Most grade 3 patients have a life expectancy of 2 - 3 years. Grade 4's rarely, if ever, making it past a year. Some have, but are in a constant battle.
There is no cure for any of this. A high-grade Glioma is top of the line, the worst possibility pathology-wise. And the current plans have Matty on 25-30 targeted radiation sessions with simultaneous chemotherapy. The only good news is the Glimo seems to be missing a pair of Monsomy 7 (a common chromosome within Gliomas making them resistant to beam radiation). Without this, the doctors are hoping it'll be more susceptible to the treatment plan.
I can't imagine being 5 6 years old and going through all of this.
Note: Matt had his 6th birthday within the hospital while recovering from the inital surgery.