Little Dillon
Remember my friend / colleague who had a baby boy 2 weeks after me .... the baby that was diagnosed with genetic disorder .... the baby whose life expectancy is 6 months?
His parents have been trying hard since day one (including getting him on an experimental tx in Barcelona for over a month). They love him just like any parents would. They never give him up on him even for a second. All they want is for him to be physically comfortable (as much as possible).
He is not doing well. He has been such a fighter for the past 6.5 months but his body is struggling. His seizures have been so violent and frequent.
Please ... please keep this little precious Dillon in your thoughts and prayers. I just cannot imagine how hard this must be for my friend and her husband .... as well as little Dillon.
His parents have been trying hard since day one (including getting him on an experimental tx in Barcelona for over a month). They love him just like any parents would. They never give him up on him even for a second. All they want is for him to be physically comfortable (as much as possible).
He is not doing well. He has been such a fighter for the past 6.5 months but his body is struggling. His seizures have been so violent and frequent.
Please ... please keep this little precious Dillon in your thoughts and prayers. I just cannot imagine how hard this must be for my friend and her husband .... as well as little Dillon.