you've got me thin, my dear.
well, i thought things were getting better, but everytime something goes right, something else has to knock ya back down. i guess that's the story of everyone's life, though.
so my brain/pituitary tumours have not grown in the last three months (good) but apparently my situation is too complicated and there is no one remotely near here good enough to take proper care of me. at least my dr is awesome enough to realize that and is like i would recommend here, here, or here. so you can research them and decide what you think will be the best place to go. so i am most likely going to have to go up to john hopkins in baltimore to have them removed in some sort of kinda radiation/kinda surgery type way called cyberknife. it's complicated and i don't really get it. i am also trying to get in to see a specialist in connective tissue diseases (since half the complication is that i have the ehlers-danlos syndrome genetic defect). since i'm already gonna be up there and all. all i know is that my life needs to improve soon or i'm gonna lose my cool.
i'm so tired all the time i can barely keep up with myspace and phone calls. it's pathetic when you don't have energy to watch tv or a movie. it sucks.
(hey val- my windows file got corrupted so i had to delete and reinstall my entire harddrive and so i lost the oregon trail thing you had send me a long time ago, i've been searching through journal entries and i can't find it. so i was wondering if you had it easily accessible to you as to info so i can redownload it.)
so my brain/pituitary tumours have not grown in the last three months (good) but apparently my situation is too complicated and there is no one remotely near here good enough to take proper care of me. at least my dr is awesome enough to realize that and is like i would recommend here, here, or here. so you can research them and decide what you think will be the best place to go. so i am most likely going to have to go up to john hopkins in baltimore to have them removed in some sort of kinda radiation/kinda surgery type way called cyberknife. it's complicated and i don't really get it. i am also trying to get in to see a specialist in connective tissue diseases (since half the complication is that i have the ehlers-danlos syndrome genetic defect). since i'm already gonna be up there and all. all i know is that my life needs to improve soon or i'm gonna lose my cool.
i'm so tired all the time i can barely keep up with myspace and phone calls. it's pathetic when you don't have energy to watch tv or a movie. it sucks.
(hey val- my windows file got corrupted so i had to delete and reinstall my entire harddrive and so i lost the oregon trail thing you had send me a long time ago, i've been searching through journal entries and i can't find it. so i was wondering if you had it easily accessible to you as to info so i can redownload it.)