one more year.
My seizures started in January of 2000. 14 years, 11 months ago. I noticed that this year, because 15 years is the point at which I basically regain my life span. About 2/3rds of adult onset diagnoses die between onset and now. In July, I suggested to Laurie Beth Brunner that I might throw a party at Arisia to mark this fact.q
Two weeks ago tomorrow, my body decided it was time to try and kill me another way (10% of people with my diagnosis are dead within an hour of it happening, 30% within the day, when it suddenly plummets to 3% if you make it through that).
It is what it is.
I am not actually too celebratory today. So many dreams got so close this year to be snatched rather violently away from me. So often, people joke, ”Here's to another year I didn't die during!". This year was supposed to mark that, as a huge, positive step.
Instead. Well. Here's to another year I didn't die during.
Two weeks ago tomorrow, my body decided it was time to try and kill me another way (10% of people with my diagnosis are dead within an hour of it happening, 30% within the day, when it suddenly plummets to 3% if you make it through that).
It is what it is.
I am not actually too celebratory today. So many dreams got so close this year to be snatched rather violently away from me. So often, people joke, ”Here's to another year I didn't die during!". This year was supposed to mark that, as a huge, positive step.
Instead. Well. Here's to another year I didn't die during.