Burning
The burning is incredible. I went to bed at 9PM to get some semblance of sleep but had to finally wake up and sit in here. Sitting is not so bad as lying down.
For those of you HP fans (which refers to most of my readers) it feels like a non-ending Cruciatus curse. The nerve pain is unreal. I'd rather have multiple hip surgeries than this.
Long story.
I was scheduled to have my right hip done (for the 3rd time) on Jan 25th. About 3 months ago I noticed my little fingers on both hands tingling. I attributed it to an increase in my reading in bed. My right leg felt cold all the time, thought that was from the surgery and failing spacer. Not so lucky. The tingling, like a foot which has fallen asleep, began spreading to my other fingers, and I now have true feeling in just my thumbs. Fingers are clumsy and have lost strength (typing now takes an age, hunt-n-peck). I contacted my doc who set up an appt w/a neurologist, and in the weeks before I saw him, the tingling was in both legs, and I was getting numb from about mid-chest down. My bladder tends to leak when I'm in the process of standing up and using the walker, so I'm in diapers.
Saw the neuro who sent me that day for an MRI, and made an appt w/a neurosurgeon for me. By this time, the tingling had become like shooting hot/cold pain down my spine and in my legs. Neurosurgeon saw my MRI, sent me immediately to hosp for CT scan. He saw that on the same day, scheduled me for a C6 corpectomy w/fusion on Jan 14th, (had to postpone the hip surgery). Bone spurs growing both into my spinal cord and in toward my throat. He said it had been taking place over many years. Herniated discs, arthritis, degenerating discs. He said I have the spine of a much older person (oi! I want mine back!). More pre-op tests done, since I have a UTI, surgery postponed until Jan 24th (am on 1 wk antibiotics). He's going to fuse the worst bit first and says I'll need further surgery.
The pain is constant, with sporadic shooting hot pain in my hands and legs, and that's if I'm keeping still. Moving feels like I'm on fire. I'm wearing a neck brace in addition to the leg brace as the foot drop is acting up again. Mostly in a wheelchair, walking only to transfer to the toilet and to this desk chair, and neither takes place very often.
My husband has been amazing and the kids are very helpful, I don't lack there. Three local friends have been fantastic, helping the kids get to scouts, watching them. My mom, one of my docs, a Facebook friend, and a lovely benefactress (who will remain unidentified unless she grants me permission to tell) have helped make Christmas enjoyable for us.
I hate what's happening to me. I must have some serious karmic burden to work off, was I Stalin? Hitler? I mean WTH?
For those of you HP fans (which refers to most of my readers) it feels like a non-ending Cruciatus curse. The nerve pain is unreal. I'd rather have multiple hip surgeries than this.
Long story.
I was scheduled to have my right hip done (for the 3rd time) on Jan 25th. About 3 months ago I noticed my little fingers on both hands tingling. I attributed it to an increase in my reading in bed. My right leg felt cold all the time, thought that was from the surgery and failing spacer. Not so lucky. The tingling, like a foot which has fallen asleep, began spreading to my other fingers, and I now have true feeling in just my thumbs. Fingers are clumsy and have lost strength (typing now takes an age, hunt-n-peck). I contacted my doc who set up an appt w/a neurologist, and in the weeks before I saw him, the tingling was in both legs, and I was getting numb from about mid-chest down. My bladder tends to leak when I'm in the process of standing up and using the walker, so I'm in diapers.
Saw the neuro who sent me that day for an MRI, and made an appt w/a neurosurgeon for me. By this time, the tingling had become like shooting hot/cold pain down my spine and in my legs. Neurosurgeon saw my MRI, sent me immediately to hosp for CT scan. He saw that on the same day, scheduled me for a C6 corpectomy w/fusion on Jan 14th, (had to postpone the hip surgery). Bone spurs growing both into my spinal cord and in toward my throat. He said it had been taking place over many years. Herniated discs, arthritis, degenerating discs. He said I have the spine of a much older person (oi! I want mine back!). More pre-op tests done, since I have a UTI, surgery postponed until Jan 24th (am on 1 wk antibiotics). He's going to fuse the worst bit first and says I'll need further surgery.
The pain is constant, with sporadic shooting hot pain in my hands and legs, and that's if I'm keeping still. Moving feels like I'm on fire. I'm wearing a neck brace in addition to the leg brace as the foot drop is acting up again. Mostly in a wheelchair, walking only to transfer to the toilet and to this desk chair, and neither takes place very often.
My husband has been amazing and the kids are very helpful, I don't lack there. Three local friends have been fantastic, helping the kids get to scouts, watching them. My mom, one of my docs, a Facebook friend, and a lovely benefactress (who will remain unidentified unless she grants me permission to tell) have helped make Christmas enjoyable for us.
I hate what's happening to me. I must have some serious karmic burden to work off, was I Stalin? Hitler? I mean WTH?