Cycle
My new (permanent) schedule at the library has me working Monday, Tuesday, Friday and Saturday. So, I worked Saturday at the library while my Awesome Wife went to her scrapbooking crop. Then Sunday we mostly spent the day hanging out at home together. We did a few chores like laundry and sheet changing but mostly just laid about. I was feeling tired (Saturday is my longest scheduled work day. They fiddled with the days so instead of working the same hours every day I work fewer on some.. it's weird) and achy and my AW had a headache and took a long nap while I read.
I was able to pick up two shifts out at Disney for next week, a 5 hr and a 8 hr shift. That should really help. And starting on Memorial Day our late hours at DAK begin. I saw a shift that goes until Midnight! For DAK that is really late. Considering it has routinely been closing at 6pm. So that's a whole extra block of hours I can start picking up, and it's late so it should be cooler, no sun.. so maybe that will help me get hours without feeling beaten! Fingers crossed!
Next week is going to be a busy week for me, in addition to my library hours, the shifts at Disney on 2 of my non library days, and then FINALLY my rheumatologist appointment on Wednesday. As much as I want to hope we get things squared away I know we won't.. he's going to send me for more blood work, and another appointment to discuss the bloodwork and THEN we start a plan. I hate it. Why couldn't he have sent me to get bloodwork a week before the appointment? So that the bloodwork is already in hand? Makes more sense to me. At least general bloodwork.. idk. I'm mostly annoyed I've had to wait so long.
Since that week is going to be crazy, I find myself saying "well.. gotta take advantage of having nothing this week and relax" which is stupid. Tomorrow morning I am picking up Bolt, and he will stay with us until Friday. So that's a few extra bucks I can squirrel away! I was thinking of going to the Magic Kingdom on Wednesday for a few hours to take photos of the parade and a few of the performers but the forecast looks pretty awful for that right now.. We will see. If nothing else I could really use the exercise of walking around the magic kingdom. I'm so GD lazy it's sickening. With me working late in the day I fret over using up all my 'Spoons' before getting to work and then feeling that miserable helpless cant move my body feeling.. This can't be my life!? I have so many adventures I want to go on, so many things I want to do and they all involve me having enough energy to get through a day! How will I explore Paris if I get exhausted after a few hours?! How will I hike to the bottom, camp and hike back up the grand canyon?! Go white water rafting?? How can I survive a Zombie apocolypse and life on the run?!
On Saturday a co worker came in and started talking about how her friend was hospitalized 3 days ago and is DYING from Lupus. They don't expect her to make it through the next few days. No one at work knows I have Lupus, because they don't need to know. But this lady was of course worried about her friend and carrying on and inside I'm freaking the fuck out. Then she started talking about how she has lost her job, she is being foreclosed on because she doesn't have any money, there is no one to look out for her kid while shes been in the hospital (so my co-worker is) and I had to go into the stacks and have a fucking panic attack. My AW said she would come pick me up when I texted her.. but then I would have to tell my co-workers.. and leave them a person short and it wouldn't be fair. So I sucked it up and went out and did my job. Once that lady left for the day it was much easier.
So.. gotta shake out of this. I have to pull myself together and get real.