But it's Never Lupus!
Thursday I had an appointment with the Rhuematologist I was going to get my lab results back to see if I have Lupus or not. Unfortunatly the Lab had lost my blood... again. About a week ago they called me up saying they screwed up and need to get more blood from me. >_< so yeah only some of the tests were done.. the major ANA test is still yet to be know. I hate waiting. But the Rhuematologist seemed pretty sure I do have Lupus. (one of the tests came back positive although I know you need more than that.) He prescribed me some medication because he said it would take up to three months to work so I might as well start taking it now. I'm kinda happy and kinda sad.. idk. I'm glad the doctor thinks I have Lupus because if they didn't I'd go to the Cardiologist next. (But I'm pretty sure it's not my heart) and from there, there are really no more specialist I can see. I'd just be stuck and have no way to pay for any of my medical bills or anything and have really no treatment for my problems. on the flip side there isn't a real cure for Lupus and if that's what I have I'll be suffering from this for the rest of my life. the meds seem to work for some people but others with Lupus still suffer a lot from it. Although if I'm diagnoisted then perhaps I can get disability and I won't have to worry so much about money. that's a plus. since there is no way I can pay any of these horrible medical bills.
The biggest plus would be if I end up totally better. The worst of my problems is this fatigue that leaves me with about an hour of energy a day, unlike say a normal person who has energy all day. So I have to choose carefully what I want to spend my energy on. (most of the time I use all my energy on cleaning because my sis is letting me stay with her for free.) but man how I would love it if I could get to where I had enough energy to get to go shopping, play with the niece and nephew just be able to go on walks and ride my bike again. :] I wonder if I will get better enough to get a job even?
well I'll find out I guess. In the mean time I need to not get sick because I'm taking an immune-supresser. that sounds kinda scary to me. I'm also suppose to stay out of the sun. ;_; and I love the sun...