(no subject)

Jun 19, 2005 02:04

Johnny went in for a breath-test the other day, and his oxygen levels are down to like, 85 when he walks. They're not supposed to be below 90-something. So the doctors put him on oxygen.

So now we have big oxygen tanks around our house, and a very noisy air converter thingie...

This doesn't make any sense. Its been barely a year since he was diagnosed. This disease is moving way to fast...he shouldn't have had to be put on oxygen for YEARS (ie: If you live for six years after your diagnosed, then the last two are usually spent on oxygen). It seems like a lung transplant is our only option, but it takes (on average) 18 months to actually get the transplant once your put on the waiting list, and at the rate this disease is developing, we don't have 18 months. We probably don't even have 6 months. If John sees me graduate high school, then we're lucky.

Our only hope is that someone in the family can donate. My mom had this dream that John and I died on in a plane crash, and she thinks that if I become a donor, then I won't survive the operation, and that John won't either (plus, he'll need two lungs, or at least both will have to be removed because the disease will spread to the healthy lung if both aren't removed).

So now, because John is on oxygen, he can't work. Why? He's an electrician and he does a lot of soddering. So naturally he can't bring oxygen into work because the whole place is likely to go up....

So Johns probably going on diability, and my mom and I are both getting new jobs. Well, she's getting a new job, and I'm getting another job so we can actually keep the house. If worse comes to worse then we'll be moving.
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