Howdy! Time for an update
Some good; some bad.
That's the only way I can really sum up my last year or so.
I'm still with my boyfriend (5 years this fall) but he moved to Alberta for a better paying job. So I haven't seen him in months and I miss him so so much. I really hope I can go visit him at some point.
I moved in June and have an awesome master bedroom and private bathroom in a large house that I share with two uber quiet guys who just came here from China for work. So no more living uber far out in Kanata! Welcome to Centrepointe bitches! :) Ahem - anyhoo my place is about a 5 min walk from Algonquin College and all the stores.
Health wise it's been a huge rollercoaster. Here are the worst most-serious things I've had since last Fall:
1) Hospital stay last October for severe pouchitis (they weren't sure at first if I had something contagious so had to be isolated in a super nice private hospital room). Private room for free? Count me in!
2) My chest tube (hickman line) spontaneously got 5 holes in it which is (a) potentially life threatining situation as air or infection could get through the line and into my lungs/heart and (b) dangerous as I had to go without ALL my IV meds and nutrition until it was fixed.
3) Hospital stay over my birthday and Valentine's day as my electrolytes were crazy unbalanced due to not getting my meds and nutrition for days while the chest tube was being fixed.
4) Hospital stay in early May for sepsis (again!). Obviously only my body would be dumb enough to get a life-threatening blood infection twice in under two years! Should have gone to the ER much sooner but super stubborn so waited till my fever was 39.8 (a fever normally begins around 38) and my pulse was 166. I was put in an ER bed and attached to heart monitors within minutes of arrival!
5) I now use a walker when I'm out which is kinda embarassing as people often stare or look at me but I'm getting more used to it and since it improves my quality of life a bit it's definitely worth any weird glances or looks. And since getting the walker my blacking out (chest unable to cope with any small activity like standing or walking) has decreased a ton. Which is awesome...I kept injuring myself from blacking out. Heck I hit my head and had a concussion from it just over a month ago,
So it's really just been one thing after another. And then with packing right after the sepsis and over-exerting myself well let's just say I'm not the healthiest girl at the moment.
My home nurse and drs are most concerned right now with my weight. My "normal" and target goal with the nutrition (tpn) by IV is 125/130 lbs. When I left hospital in May for the sepsis I was 105 lbs,
And this morning I now weight 92 lbs. Yipe. Even my double zero sized jeans are falling of me.
But despite all this I'm doing my best to stay positive and focus on the good things. I mean things could always be way worse... And I'm so grateful that I can live at home and not in a hospital setting 24/7.
On the days when I'm stuck on bedrest (which is most of the time it seems at least recently) I've been watching DVDs and playing Rift on the PC (kinda like World of Warcraft but more fun AND free to play!) And I love having the windows open at my new place - birds chirp happily 24/7.
Anyhoo time for my morning medication regiment (6 IV meds to run through; 20 minutes for each one).
Hope everyone is having or will have a most awesome happy day! :) :)
That's the only way I can really sum up my last year or so.
I'm still with my boyfriend (5 years this fall) but he moved to Alberta for a better paying job. So I haven't seen him in months and I miss him so so much. I really hope I can go visit him at some point.
I moved in June and have an awesome master bedroom and private bathroom in a large house that I share with two uber quiet guys who just came here from China for work. So no more living uber far out in Kanata! Welcome to Centrepointe bitches! :) Ahem - anyhoo my place is about a 5 min walk from Algonquin College and all the stores.
Health wise it's been a huge rollercoaster. Here are the worst most-serious things I've had since last Fall:
1) Hospital stay last October for severe pouchitis (they weren't sure at first if I had something contagious so had to be isolated in a super nice private hospital room). Private room for free? Count me in!
2) My chest tube (hickman line) spontaneously got 5 holes in it which is (a) potentially life threatining situation as air or infection could get through the line and into my lungs/heart and (b) dangerous as I had to go without ALL my IV meds and nutrition until it was fixed.
3) Hospital stay over my birthday and Valentine's day as my electrolytes were crazy unbalanced due to not getting my meds and nutrition for days while the chest tube was being fixed.
4) Hospital stay in early May for sepsis (again!). Obviously only my body would be dumb enough to get a life-threatening blood infection twice in under two years! Should have gone to the ER much sooner but super stubborn so waited till my fever was 39.8 (a fever normally begins around 38) and my pulse was 166. I was put in an ER bed and attached to heart monitors within minutes of arrival!
5) I now use a walker when I'm out which is kinda embarassing as people often stare or look at me but I'm getting more used to it and since it improves my quality of life a bit it's definitely worth any weird glances or looks. And since getting the walker my blacking out (chest unable to cope with any small activity like standing or walking) has decreased a ton. Which is awesome...I kept injuring myself from blacking out. Heck I hit my head and had a concussion from it just over a month ago,
So it's really just been one thing after another. And then with packing right after the sepsis and over-exerting myself well let's just say I'm not the healthiest girl at the moment.
My home nurse and drs are most concerned right now with my weight. My "normal" and target goal with the nutrition (tpn) by IV is 125/130 lbs. When I left hospital in May for the sepsis I was 105 lbs,
And this morning I now weight 92 lbs. Yipe. Even my double zero sized jeans are falling of me.
But despite all this I'm doing my best to stay positive and focus on the good things. I mean things could always be way worse... And I'm so grateful that I can live at home and not in a hospital setting 24/7.
On the days when I'm stuck on bedrest (which is most of the time it seems at least recently) I've been watching DVDs and playing Rift on the PC (kinda like World of Warcraft but more fun AND free to play!) And I love having the windows open at my new place - birds chirp happily 24/7.
Anyhoo time for my morning medication regiment (6 IV meds to run through; 20 minutes for each one).
Hope everyone is having or will have a most awesome happy day! :) :)