(no subject)
We just popped out for coffee and cake. As it turns out, I had a cup of tea and we both had savoury quiche or maybe pie, but the principle is the same.
10B's work day had proven to be a washout and although he has non-work things to do, I guess I've also been feeling we need to mix things up a bit round here, especially when I think I *can* manage something. So for a little while today we sat in a place other than home, with other people shambling by around us. It was nice and as per usual I find myself thinking we should do this sort of thing more. And we probably could. It may cost me the occasional trip with 10B to do the weekly shopping, but I think I'd prefer this over the supermarket.
~~~
At the moment I'm feeling particularly frustrated by my lack of spoons. There are a few things that would probably give me *more* spoons if I could actually manage doing them but I can't! (Orthotics and a sleep apnoea splint are two things that spring to mind). At the moment things are still too unpredicable and my bad days are simply too bad, so they keep getting put off.
*grumps*
I think remedial action may have to be taken on this front: more carer support and better planning either side of the appointment that I've felt the need to have in recent times.
I have one outside appointment left this week - to that brain-care specialist I wrote about yesterday. My ambivalence is not helped by my feeling that right now, I'd rather be either tending to other medical matters or simply resting up. Seeing him *may* pay off, which is why I am going, but I'm going to be really peeved if it doesn't.
It is way past time for healthcare professionals to get a better understanding of "fatigue". Or maybe it's way past time to get rid of the word altogether. It includes experiences that are not only widely variable, but mutually exclusive and rarely explored or understood by anyone except people who are crippled by those experiences. Everyone else assumes a level of understanding and experience that they simply don't have.
10B's work day had proven to be a washout and although he has non-work things to do, I guess I've also been feeling we need to mix things up a bit round here, especially when I think I *can* manage something. So for a little while today we sat in a place other than home, with other people shambling by around us. It was nice and as per usual I find myself thinking we should do this sort of thing more. And we probably could. It may cost me the occasional trip with 10B to do the weekly shopping, but I think I'd prefer this over the supermarket.
~~~
At the moment I'm feeling particularly frustrated by my lack of spoons. There are a few things that would probably give me *more* spoons if I could actually manage doing them but I can't! (Orthotics and a sleep apnoea splint are two things that spring to mind). At the moment things are still too unpredicable and my bad days are simply too bad, so they keep getting put off.
*grumps*
I think remedial action may have to be taken on this front: more carer support and better planning either side of the appointment that I've felt the need to have in recent times.
I have one outside appointment left this week - to that brain-care specialist I wrote about yesterday. My ambivalence is not helped by my feeling that right now, I'd rather be either tending to other medical matters or simply resting up. Seeing him *may* pay off, which is why I am going, but I'm going to be really peeved if it doesn't.
It is way past time for healthcare professionals to get a better understanding of "fatigue". Or maybe it's way past time to get rid of the word altogether. It includes experiences that are not only widely variable, but mutually exclusive and rarely explored or understood by anyone except people who are crippled by those experiences. Everyone else assumes a level of understanding and experience that they simply don't have.