Jul 03, 2008 23:04
Yes, I know, it has been forever since I last posted and I suppose the few people who do keep up with me might be glad to see me here!
To try and pick up where I was last time., my heath has continued to be a very long downhill slope as I have gotten worse and worse with my foot, and my lungs following a close second. But this week, after almost 6 months of nothing from doctors, and knowing my body and how it reacts and does, I have truly been prepared and very scared that I was going to die because of this infection, wound, burn, noooo,we don't know for sure, lets just watch it.
By chance or God's will, or providence, Mom was going thru some drawers and found the number to the doctor she saw when she had her breast cancer and lymphadema. This woman just happens to be one of the top wound care specialists in the country!!!! I called her and made an appointment for July 8th, but got a call on Monday asking if I would like a cancellation appointment for Tuesday (next day) at 9AM. I jumped and said YES. Mom and I left Lake Charles at 5 am and headed to Houston. She had to drive over because I had not slept at all the night before being so nervous and scared. We got in and didn't wait very long before they brought me into a room. Dr. Smith came in, introduced herself, listened while Mom and I both explained what had occurred these last 6 months with my foot and the inactivity of my DOCTORS , and covered my past history as well. She then examined my foot and told us she wanted to preform a few tests to 1)check on the actual oxygen levels in my bloodstream and lungs from heart down to my foot, as well as two punch biopsy's to see if what she is sure is the diagnosis, really is. She then cleaned out my wound, took the biopsy's and proceeded to debride the wound, asking why in the world my regular foot doctor had not done this! Now I will admit, after all the digging and clearing out the bad skin and diseased and dead skin, I have a hole about 1/2 inch deep in my foot, but it actually helped it. She then told us in here opinion, what my diagnosis is......MY FOOT AND WOUND HAS PYODERMA GANGRENOSUM, THE DISEASE THAT ALMOST KILLED ME AND STARTED ALL THIS SHIT OVER 30 YEARS AGO!!!!! THE MOST INTERESTING THING IS THAT ANY OF THE 3 DOCTORS THAT HAVE SEEN ME SHOULD HAVE TESTED ME FOR THIS ALMOST FIRST AND FOREMOST, SINCE IT IS IN MY HISTORY!!!!!
SO MY FRIENDS, I AM NOT GOING TO DIE!!!!!!!!!!! I will however, have to go thru several more months of intense treatment and that I do not mind in the least. At last I know what is wrong with me, at last I know that all my fears about my dying are going to happen, and most of all, at last I don't have to worry about how I will make sure that Mom, Tracy, and Ashley will be okay. I know it will take longer to heal than last time, but then again, I am now almost 50, not 19, so it takes a bit more time to heal up. I just feel so wonderful that I will be okay. I told Tracy and he is so relieved since he's been so worried about me, Ashley called and I told her, and of course Mom was with me when the doctor told us the good news.
I can relate other stuff about the babies (pup, cats) later, but I am exhausted after a very long day and am going to bed!!! Take care my dear friends and sweet dreams to all of you! Night Nite!
Carla