Comments | snapdragon76: No, I'm not dead...

snapdragon76

No, I'm not dead...

Jun 29, 2011 22:53

As some of you may or may not know, I have Crohn's colitis. I've had it for a little over ten years now. As a result, I have to get a colonoscopy every year. Normally they turn out perfectly fine. no inflammation, no major changes. This year, however, there were significant changes... and not necessarily good ones ( Read more... )

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coastal_spirit June 30 2011, 21:15:54 UTC

I've had psoriatic arthritis for 15 years. I took Remicade treatments for a year, and I can honestly say it was the best year I've had since it all started - no side effects, no pain, lost 50 pounds and I felt great. It did become less effective after a year and I had to move on to something else, but that's no indication that it would do the same for you. I hope it works well for you. It's nothing to be particularly wary of, I can tell you that. :)

I used to sit and read manga while I had my treatments. It was actually quite relaxing. ;)

snapdragon76 June 30 2011, 23:51:43 UTC

Well, my one friend did say she's been on it for 5 years, so maybe it works differently for different ailments?

I also heard they add some liquid Benadryl to the IV, so I'll most likely be napping, lol!

coastal_spirit July 3 2011, 19:56:37 UTC

It most likely does, and works differently for different people. After Remicade, I was on Enbrel for almost 10 years before it stopped working.

They probably do add the Benadryl as a precaution. I never had it, but they did monitor me closely the first few times in case I had a reaction.

snapdragon76 July 3 2011, 21:50:08 UTC

well, I guess I'll find out soon enough... that is if this overreaching feeling of ickiness I've been having isn't a sign of me coming down with anything. If so, than I'd have to be on antibiotics for who knows how long and that push my treatment back even further...

*headdesk*

coastal_spirit July 4 2011, 14:44:15 UTC

Oh, no. I know about that situation, having been sidelined for a month to 6 weeks this winter with bronchitis/pneumonia/ear infections. It's very annoying to feel like crap and then to have to feel worse because you can't take your meds for another condition. Here's hoping it's not anything serious!

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