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Jul 15, 2005 14:59




I have CVID. That stands for Common Variable Immunodeficiency Disorder. It pretty much means that I have a really weak immune system. Well, in my case, my numbers are so low, I pretty much have no immune system. Every three weeks, I have to go to a cancer ward, where kids&adults get chemo, and other infusions. I get an IV stuck in my arm and get gammaglobulin infusions. It's basically immunities from people who donate blood, only run through tons of detergents and such to make sure theres nothing in it that could get me sick. I was born with it, but it didn't start showing up until I was two. I constantly had ear infections, sinus problems, colds, bronchitis, you name it, I had it. Then I started my summer off by being in the hospital with an infection and pneumonia. My parents suspected that I had CVID. We first heard about it four years ago when my dad was diagnosed with it. It's incredibly rare. 1 in 50,000 people have it. That means that 2 in 100,000 that have it are in the same family. Coincidence? I think not. Thanks Dad.

You're probably wondering why I'm bothering to tell you all of this. Because if you ever plan on hanging out with me ever again, you can't be sick. Because I will get it. And it will be ten times worse than you had it. Story of my life. Also, if anyone else in your house is sick, I can't be there. And I can only attend huge sleepovers after my fifth infusion or so. Plus, the day of and the day after my infusion, I have to rest.

I don't want a bunch of pity comments. "Oh Mandy, I'm so sorry, that sucks." I can live with it. It doesn't affect my life all that much. I'm just grateful I didn't have my numbers low enough that I had to have a bone marrow transplant.

PS. numbers=IGg, IGm, and IGa levels. They're what make up your immune system.
Mine are all below 100. They're supposed to be in the 1500's. My IGg (the most important one) is -7. Awesome, eh?

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