(no subject)
I'm probably a third of my way through my hospital incarceration, and aside from feeling tired a lot and sometimes queasy (it comes and goes and I can't put my finger on a specific cause), my biggest complaint is that when you have a chest catheter, it hurts to hiccup. And it's really hard to do things like shower/change clothes when you're attached to an IV and they won't disconnect you from it for any reason. I am currently only wearing stretchy tank tops that i can step into as my wardrobe, which is a very strange thing to do.
I'm on day 2 of the transplant, so i'm 1/50th through my 100 days where I can't be further than 20 minutes from the hospital, and hopefully i'll be able to get out sometime around day 14-21. My target discharge date from them is March 28, which would be day 22, but they said i could perhaps get out early if i look like i'm getting better faster than expected. I currently meet all but one of the requirements for discharge (everything but blood counts) so I can't do anything for myself but eat well and cross my fingers that jeffrey's cells do their magic in a non-slowpoke manner.
The nurses keep trying to get me to come to the "young adult" meetings with the other age 18-25 patients. I feel like I would not be able to relate to most of them as I never showed any symptoms and I didn't really ever feel bad (chemo nausea for me was less bad than the stomach bugs i used to get when i was little) and I'm married and have a job and am technically working from the hospital and they're like, upset that they had to take time off of college for this.
The chaplains also keep trying to get me to take communion and such and it's like... I can't eat fresh fruits or vegetables, I surely can't drink out of a wine cup that's been shared with other people with who knows what germs. I let one woman in to give me a blessing thinking it's be a stick-her-hand-on-my-head, "i'm praying for you" and done, but she ended up poking me with holy water all over and then doing the same to patrick and saying like 6 prayers and leaving me with a rosary made entirely out of fishing wire so i could take it inside the cat scan machine the next time i had to have one (a nice thought, but leukemia doesn't show up on cat scans so i've not ever had to have a full-body scan). It was very odd, and i probably won't do that again. They also asked if I wanted to have a priest bless the stem cells before the transplant, which I thought was more than a little weird, but I guess that someone wanted it once and now they ask everyone.
I want visitors from Beer Bike on Saturday, if you're in town :D
I'm on day 2 of the transplant, so i'm 1/50th through my 100 days where I can't be further than 20 minutes from the hospital, and hopefully i'll be able to get out sometime around day 14-21. My target discharge date from them is March 28, which would be day 22, but they said i could perhaps get out early if i look like i'm getting better faster than expected. I currently meet all but one of the requirements for discharge (everything but blood counts) so I can't do anything for myself but eat well and cross my fingers that jeffrey's cells do their magic in a non-slowpoke manner.
The nurses keep trying to get me to come to the "young adult" meetings with the other age 18-25 patients. I feel like I would not be able to relate to most of them as I never showed any symptoms and I didn't really ever feel bad (chemo nausea for me was less bad than the stomach bugs i used to get when i was little) and I'm married and have a job and am technically working from the hospital and they're like, upset that they had to take time off of college for this.
The chaplains also keep trying to get me to take communion and such and it's like... I can't eat fresh fruits or vegetables, I surely can't drink out of a wine cup that's been shared with other people with who knows what germs. I let one woman in to give me a blessing thinking it's be a stick-her-hand-on-my-head, "i'm praying for you" and done, but she ended up poking me with holy water all over and then doing the same to patrick and saying like 6 prayers and leaving me with a rosary made entirely out of fishing wire so i could take it inside the cat scan machine the next time i had to have one (a nice thought, but leukemia doesn't show up on cat scans so i've not ever had to have a full-body scan). It was very odd, and i probably won't do that again. They also asked if I wanted to have a priest bless the stem cells before the transplant, which I thought was more than a little weird, but I guess that someone wanted it once and now they ask everyone.
I want visitors from Beer Bike on Saturday, if you're in town :D