Ranty Today
So, as of Sunday evening, I found myself bleeding again. If, somehow, you're not aware, I have Ulcertive Colitis, which means that when I start bleeding, it's a very unpleasant thing. You can look up the wheres and hows and whys on your own. Wikipedia exists, dammit.
Having breakthrough bleeding now is especially concerning because my next Remicaid treatment isn't for another 2 weeks. If I were only a week away from my treatment, we could drop from 5 weeks to 4 and be done with it, but now I'm showing symptoms after only 3 weeks and I can't get infusions in any intervals shorter than 4 weeks. Since it's only blood and pain, my doctor hopes that it's a response to environmental things, like too much fiber in my diet and boldily tolls taken by the heat & stress, but, like so much with Remicaid, there's a lot of 'wait and see.' I'm to increase my Asacol up to 4 pills twice daily and hope that helps, because otherwise we might have to go back to mesalamine suppositories and fuck that right in the face.
Huh. The first time I was prescribed those, I couldn't even admit what the medication was. Is this personal growth? Or just an out-pouring of my 'enh, fuckit' mentality. WHO KNOWS?
After this upcoming Remicaid appointment, they'll all be scheduled for 4 week intervals instead of 5. Hopefully that's enough to keep me going, because otherwise, I'm off Remicaid and onto something else. My doctor outlined my possibilities for me back when I dropped from 7 weeks to 5 and they look fairly grim:
*Try Humira (30% of patients who stop responding to Remicaid respond to Humira)
*Ingest pig parasites (assuming insurance covers them and they're beyond the testing phase)
*Get surgery.
In all, these are not exciting options.
Right now, I'm in a small-to moderate amount of pain, like a 3-4 "resting" pain scale. The pain can spike, but I'm pretty solidly at a 3-4. It feels like lower back pain and--you know that pain you get when you're so hungry you feel kinda hollow and it hurts? I feel kinda like that. I'm also more tired than usual and need to rest more because, surprise! Pain and slight bleeding and attacking your own insides puts a strain on your body.
I'm hoping that in a day or two I can buck up and feel philosophical about all of this bullshit, but right now, I'm pissed off, grumpy, and hating on everything.
[Moving over to Dreamwidth. Catch me over there as booksomewench. This entry cross-posted to both sites. Feel free to comment here or there.]
Having breakthrough bleeding now is especially concerning because my next Remicaid treatment isn't for another 2 weeks. If I were only a week away from my treatment, we could drop from 5 weeks to 4 and be done with it, but now I'm showing symptoms after only 3 weeks and I can't get infusions in any intervals shorter than 4 weeks. Since it's only blood and pain, my doctor hopes that it's a response to environmental things, like too much fiber in my diet and boldily tolls taken by the heat & stress, but, like so much with Remicaid, there's a lot of 'wait and see.' I'm to increase my Asacol up to 4 pills twice daily and hope that helps, because otherwise we might have to go back to mesalamine suppositories and fuck that right in the face.
Huh. The first time I was prescribed those, I couldn't even admit what the medication was. Is this personal growth? Or just an out-pouring of my 'enh, fuckit' mentality. WHO KNOWS?
After this upcoming Remicaid appointment, they'll all be scheduled for 4 week intervals instead of 5. Hopefully that's enough to keep me going, because otherwise, I'm off Remicaid and onto something else. My doctor outlined my possibilities for me back when I dropped from 7 weeks to 5 and they look fairly grim:
*Try Humira (30% of patients who stop responding to Remicaid respond to Humira)
*Ingest pig parasites (assuming insurance covers them and they're beyond the testing phase)
*Get surgery.
In all, these are not exciting options.
Right now, I'm in a small-to moderate amount of pain, like a 3-4 "resting" pain scale. The pain can spike, but I'm pretty solidly at a 3-4. It feels like lower back pain and--you know that pain you get when you're so hungry you feel kinda hollow and it hurts? I feel kinda like that. I'm also more tired than usual and need to rest more because, surprise! Pain and slight bleeding and attacking your own insides puts a strain on your body.
I'm hoping that in a day or two I can buck up and feel philosophical about all of this bullshit, but right now, I'm pissed off, grumpy, and hating on everything.
[Moving over to Dreamwidth. Catch me over there as booksomewench. This entry cross-posted to both sites. Feel free to comment here or there.]