Comments | serenity151979: You wouldn't like me when I'm angry

serenity151979

You wouldn't like me when I'm angry

Feb 05, 2010 22:09

I debated whether to lock this post and make it friends only, but in the end I decided to leave it unlocked, as I know the EDS newsletter can only link to open and public blogs, and perhaps other newly diagnosed people are kinda going through the same things I am.

( The one where I whine self-indulgently for a while )

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ghymoreid February 10 2010, 10:49:08 UTC

Yeah, this kinda hit me a couple of years ago too. For me it was more that something that's always been an integral part of who I am - the flexibility (I was a gymnast and a dancer and an acrobat and *ahem* a contortionist for a while) was actually down to this disorder and, frankly, was doing me damage. Something that I can't do anything about, something that I was born with and couldn't change if I wanted to, is "bad". I mean, I can take vitamins and do my physio (which, if you find a good one who understands hypermobile people, will definitely make a difference - that and getting the right balance of pain medication) and not smoke or drink to excess or eat fatty foods or have wild abandoned sex with inappropriate partners ... but I can't stop being hypermobile. I can't wake up tomorrow and decide, "You know, I'm sick of this EDS shit. I think I'll try hang-gliding instead." And it's a headfuck ( ... )

serenity151979 February 10 2010, 16:55:34 UTC

*grins* OK, you're totally on my 'amazing people who inspire you' list. =) Thank you for taking the time to help, reading your story does give me hope that there is some light at the end of the tunnel, and I can get there. Even if I have to have some Gollum days in between (I'm totally stealing that, that's awesome) And I don't smoke or drink anyway, and the 'diet' thing is something I'm working on right now. Um... not counting the hot chocolate and cake I had this afternoon, obviously. =b

Yep, I have quite the DVD collection as well! My set up is in my bedroom, so when I'm feeling really crappy I just go to bed and watch a boxset or a really good movie to distract myself.

Also *yikes* at your photo, lol. I can do the crab, but I definitely don't bend that way! WOW. Does that hurt? And.... how do you get up again?

ghymoreid February 11 2010, 09:11:56 UTC

Hot chocolate and cake totally allowable. Especially if you're (like me) on drugs which mean a Black Russian's probably a bad idea. ;) I have developed an indecent fondness for Green & Black's hot chocolate, and sometimes even indulge myself with the Lindt variety. Tres nommy. (I also still smoke. Less than ten a day, but nicotine still plays a part for me. A girl's gotta have some vices left to her ( ... )

serenity151979 February 11 2010, 14:43:22 UTC

Hahaha, pathologically clumsy would be one way of putting it! I can't blame mine on small feet though (UK size 6 with loooooong toes) but my proprioception is totally screwed. There's not a doorframe I don't know intimately. At least now I have a reason for tripping over my own feet or walking straight into a chair that's BEEN THERE FOREVER.

Luckily so far I haven't had any pressure from my doctors to lose weight, although I'd assumed they would (have heard plenty of other people's tales) but I would like to lose a little bit for my own health. I'm just trying to do it slowly - problem is with me is that I don't have a great appetite at the best of times so I don't tend to eat much, then I'll get all 'wurgh' and need something quickly and tend to go for junk as the quick fix.

ext_242482 August 23 2010, 19:24:23 UTC

Hi there ( ... )

ext_242482 August 23 2010, 19:26:03 UTC

And, I can hear the withheld breath of you all ( ... )

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