Yes i am still here
Yes I am still here and have not taken a turn for the worse. Things are about the same as I never really get a chance to recope before they start another round of chemo. At the end of round 3 now and at this point my hemoglobin drops as the bone morrow has not really recouped from the last round of chemo. As soon as it stabilizes they will start a 4th round of chemo after which time they will eventually do another bone morrow which I have not had since the end of round 1. Hopefully what they have been doing get some positive results. The fist round was very effective so hopefully the last three will also be doing the job.
I have not really been posting, as it seems that things are not exactly positive things at this point and I had to post negative things again and again. I will say this much however - - it really gets depressing on occasions and often think to myself, is this as good as it gets? I don’t think that is the case but that thought goes through my mind. I don’t see but a very few friends as now that I am out of the hospital and at home they think that all is back to normal which is not that case so it gets a bit lonely. I saw more people when I was in the hospital then I do now that I am home. But it it is much better at home than in the hospital. Not as expensive either.
When my white count is down I try to stay away from any crowded areas. Going to movies on occasion at 11:30 AM when no one is there during the week just to get out of the house.
My best friends Carl and sue headed out on wed to San Francisco and will be back on Monday. I am really going to miss them when they head to the west coast in June and not return until Sep. Hopefully things will have stabilized out by that time that I can actually do a limited amount of traveling. I am not sure if I am going to fly or just take my time driving, as there are places alone the way to the West Coast that I would like to see. My good friends Jesus and Paul from Albuquerque are coming to KC in a few weeks. No schedule is set as yet but it will be great to see them. Jesus took the time and expense to fly to KC when I was in the hospital which was very special to me as well as a surprise visit from notdefined ,
MH58 when I was in the ICU. I was still kind of out of it at the time and could not really talk that well but my mind remembered I remember how special that visit was. I think that was shortly after a time when there was a question if I was going to make it or not. I guess I was in much worse shape there than I realized. $179,000 later i was transfered to KU Med Center.
So again I have not been posting that much as I think that people get tired of hearing how my life is pretty much going to the clinic getting blood and then chemo. As I said I just got tired of reading what I would post as it seemed to negative.
I sometimes don’t realize how much better I am now compared to what I was at the end of Feb. So I guess I have to say I am better.
I guess I should after spending amot $700,000 bucks. I didn't spend that much and the insurance company adjusted that price but if I had not insurance I would pretty much be out of luck.
Hope all is well out there in LJ land.
I have not really been posting, as it seems that things are not exactly positive things at this point and I had to post negative things again and again. I will say this much however - - it really gets depressing on occasions and often think to myself, is this as good as it gets? I don’t think that is the case but that thought goes through my mind. I don’t see but a very few friends as now that I am out of the hospital and at home they think that all is back to normal which is not that case so it gets a bit lonely. I saw more people when I was in the hospital then I do now that I am home. But it it is much better at home than in the hospital. Not as expensive either.
When my white count is down I try to stay away from any crowded areas. Going to movies on occasion at 11:30 AM when no one is there during the week just to get out of the house.
My best friends Carl and sue headed out on wed to San Francisco and will be back on Monday. I am really going to miss them when they head to the west coast in June and not return until Sep. Hopefully things will have stabilized out by that time that I can actually do a limited amount of traveling. I am not sure if I am going to fly or just take my time driving, as there are places alone the way to the West Coast that I would like to see. My good friends Jesus and Paul from Albuquerque are coming to KC in a few weeks. No schedule is set as yet but it will be great to see them. Jesus took the time and expense to fly to KC when I was in the hospital which was very special to me as well as a surprise visit from notdefined ,
MH58 when I was in the ICU. I was still kind of out of it at the time and could not really talk that well but my mind remembered I remember how special that visit was. I think that was shortly after a time when there was a question if I was going to make it or not. I guess I was in much worse shape there than I realized. $179,000 later i was transfered to KU Med Center.
So again I have not been posting that much as I think that people get tired of hearing how my life is pretty much going to the clinic getting blood and then chemo. As I said I just got tired of reading what I would post as it seemed to negative.
I sometimes don’t realize how much better I am now compared to what I was at the end of Feb. So I guess I have to say I am better.
I guess I should after spending amot $700,000 bucks. I didn't spend that much and the insurance company adjusted that price but if I had not insurance I would pretty much be out of luck.
Hope all is well out there in LJ land.