Status Report
Been busy trying to change some stuff ...
1. Found out in a fit of "OMG IT'S TOO HOT!" type frustration that it's quite possible that the local housing department (I'm in public housing) actually will get me an air conditioner since I have a huge medical need for it. I tried to get them to do this years ago and it was impossible at that time, but it occurred to me that things change in 15 years (who'd've thought!) and so I tried again.
It was pretty funny actually ... I rang the housing department expecting to leave a message for somebody who'd probably call me back in a few weeks, being that it's between Christmas and New Years. So I left a message then I swear FOUR MINUTES later he rang back! I was so taken aback it took me a moment to get my brain online ... so he looked things up and eventually said there's this very short list of qualifying conditions, it only has these super uncommon medical conditions and he sounded *very* dubious, like he'd pre-decided the answer was "no" but was going through the motions.
So I asked him to read the list ... and when he got to the end (amidst some hilarious pronunciations, I don't think he'd ever tried to say "Fibromyalgia" or "Polymyositis" before!) I said I actually had official diagnoses of three of the conditions, which is absolutely true. You could hear the light switch flick over in his brain and suddenly he was very helpful.
So I got all the forms filled out by my doctor and me and appropriately signed and emailed them back to him today. Fingers crossed!!
(I do have an air conditioner in the lounge room but my CPAP is in the bedroom and shifting between hospital bed in lounge and waterbed in bedroom is one of the things that's HUGE for controlling my pain. Trying to get support workers to shift CPAP on hot days and then dealing with the huge pain and not being able to shift back at midnight if the pain trumps the heat is just too much to deal with anymore.)
2. I've finally caved and decided to increase my neurontin dose again. The migraines are just increasing no matter how strict I am with the low histamine anti migraine diet. I can only conclude that my general everything-getting-worse is what's driving the migraines and that's totally out of my control. So I figure it's time to resort to the Big Guns and increase the meds.
I'm rather peeved by that, I worked really super hard to get the neurontin dose down, so increasing it feels like this big defeat even though it's totally not. Even after the increase it's only at half my maximum dose.
So anyway started on that higher dose tonight, so I'm not sure if it'll be a hellish week while my brain adjusts or if it'll just help straight away. Going down in dose is always terrible but it's 15+ years since I ever went up so I can't remember.
That's all I can think of right now. Happy Holidays everybody, and here's to 20173
r
This entry was originally posted at http://jeshyr.dreamwidth.org/318814.html. Please comment there using OpenID - you can log in with OpenID using your LiveJournal URL which is yourLJusername.livejournal.com.
1. Found out in a fit of "OMG IT'S TOO HOT!" type frustration that it's quite possible that the local housing department (I'm in public housing) actually will get me an air conditioner since I have a huge medical need for it. I tried to get them to do this years ago and it was impossible at that time, but it occurred to me that things change in 15 years (who'd've thought!) and so I tried again.
It was pretty funny actually ... I rang the housing department expecting to leave a message for somebody who'd probably call me back in a few weeks, being that it's between Christmas and New Years. So I left a message then I swear FOUR MINUTES later he rang back! I was so taken aback it took me a moment to get my brain online ... so he looked things up and eventually said there's this very short list of qualifying conditions, it only has these super uncommon medical conditions and he sounded *very* dubious, like he'd pre-decided the answer was "no" but was going through the motions.
So I asked him to read the list ... and when he got to the end (amidst some hilarious pronunciations, I don't think he'd ever tried to say "Fibromyalgia" or "Polymyositis" before!) I said I actually had official diagnoses of three of the conditions, which is absolutely true. You could hear the light switch flick over in his brain and suddenly he was very helpful.
So I got all the forms filled out by my doctor and me and appropriately signed and emailed them back to him today. Fingers crossed!!
(I do have an air conditioner in the lounge room but my CPAP is in the bedroom and shifting between hospital bed in lounge and waterbed in bedroom is one of the things that's HUGE for controlling my pain. Trying to get support workers to shift CPAP on hot days and then dealing with the huge pain and not being able to shift back at midnight if the pain trumps the heat is just too much to deal with anymore.)
2. I've finally caved and decided to increase my neurontin dose again. The migraines are just increasing no matter how strict I am with the low histamine anti migraine diet. I can only conclude that my general everything-getting-worse is what's driving the migraines and that's totally out of my control. So I figure it's time to resort to the Big Guns and increase the meds.
I'm rather peeved by that, I worked really super hard to get the neurontin dose down, so increasing it feels like this big defeat even though it's totally not. Even after the increase it's only at half my maximum dose.
So anyway started on that higher dose tonight, so I'm not sure if it'll be a hellish week while my brain adjusts or if it'll just help straight away. Going down in dose is always terrible but it's 15+ years since I ever went up so I can't remember.
That's all I can think of right now. Happy Holidays everybody, and here's to 20173
r
This entry was originally posted at http://jeshyr.dreamwidth.org/318814.html. Please comment there using OpenID - you can log in with OpenID using your LiveJournal URL which is yourLJusername.livejournal.com.