Ah well
I guessed it was coming at least. We didn't get a complete report today but the initial look showed new lesions (mets) in the liver and at least one growing. The new mets are enough to kick me out of the trial.
Dr D'Amato demonstrated again why she as is an awesome clinical oncologist but would make a lousy poker player. I knew the answer as soon as I saw her face. She's going to do everything she can to keep my alive - she made that perfectly clear. Right now, the fall back plan is to go back to high dose Ifosfamide next week. It's not completely decided until they review my last 4 CTS to see how effective it might have been. The scans aren't completely clear because I had a month between my first scan and starting HDI. Then I had scans after the treatment and before starting the trial. She's going to try to determine how effective it was and re-present my case to the tumor board. One cycle is generally not enough to get a good read on how it works
More chemo is almost certain - I'm not any more operable than I was. I'm going to be placed on waiting lists for two trials at Moffitt and she'll see about finding someone to get me ET-743 on compassionate use. I also signed a consent for a third trial that I could start 8/15. It's just not a great trial in my book so I'll likely go for other options.
Susan and I are both a bit upset. But we'll go on - what other choice to we have?
Dr D'Amato demonstrated again why she as is an awesome clinical oncologist but would make a lousy poker player. I knew the answer as soon as I saw her face. She's going to do everything she can to keep my alive - she made that perfectly clear. Right now, the fall back plan is to go back to high dose Ifosfamide next week. It's not completely decided until they review my last 4 CTS to see how effective it might have been. The scans aren't completely clear because I had a month between my first scan and starting HDI. Then I had scans after the treatment and before starting the trial. She's going to try to determine how effective it was and re-present my case to the tumor board. One cycle is generally not enough to get a good read on how it works
More chemo is almost certain - I'm not any more operable than I was. I'm going to be placed on waiting lists for two trials at Moffitt and she'll see about finding someone to get me ET-743 on compassionate use. I also signed a consent for a third trial that I could start 8/15. It's just not a great trial in my book so I'll likely go for other options.
Susan and I are both a bit upset. But we'll go on - what other choice to we have?