CF Reality
It’s almost 11 pm now and I have so much on my mind. First thing I wanted to do is bring attention to the girl that has made me step out of this shadow and really show what its like to live with Cystic Fibrosis. She had more courage then so many people that I know, my only wish is that I would have know her before she passed. She got her transplant but then rejection settled in and she didn’t get her new lungs in time. Hurts my heart to write that, but her name is Eva Markvoort. So please go on YouTube and really get the chance to meet this girl that has more courage then anyone I know. I wanted you to all know why I started this journal and YouTube journal about my life with Cystic Fibrosis and my other illnesses.
Cystic Fibrosis can make a person scared of a lot of things. A LOT. But I think the one thing that scares me the most is leaving the ones that I love a lot sooner then I am supposed to. So many people live to be in their 80’s these days but don’t appreciate the fact that they got that while you have others that die at young ages that would trade almost anything to be here as long as possible. These are the things that I am scared of, not getting to marry Brad in time, having my parents bury me instead of the other way around, not getting a chance to make that one difference in a person’s life, and not making my parents proud of me when it is all said and done. So many things that I am scared of, but with being scared comes strength as well. You have to be stronger then the average person to make it through all the hospital stays and other things that we go through. Not saying that the normal person isn’t strong just that we face another world that many people don’t. I don’t know I just had to get this off my chest…..I am feeling weaker lately then stronger, but I am sure ill get back to my strong self, just it I took a hit from people this week that only want to bring people down and so I have to just back off and take time to myself and then re-enter the fight stronger then I was.
Cystic Fibrosis can make a person scared of a lot of things. A LOT. But I think the one thing that scares me the most is leaving the ones that I love a lot sooner then I am supposed to. So many people live to be in their 80’s these days but don’t appreciate the fact that they got that while you have others that die at young ages that would trade almost anything to be here as long as possible. These are the things that I am scared of, not getting to marry Brad in time, having my parents bury me instead of the other way around, not getting a chance to make that one difference in a person’s life, and not making my parents proud of me when it is all said and done. So many things that I am scared of, but with being scared comes strength as well. You have to be stronger then the average person to make it through all the hospital stays and other things that we go through. Not saying that the normal person isn’t strong just that we face another world that many people don’t. I don’t know I just had to get this off my chest…..I am feeling weaker lately then stronger, but I am sure ill get back to my strong self, just it I took a hit from people this week that only want to bring people down and so I have to just back off and take time to myself and then re-enter the fight stronger then I was.