today's visit
(copied from an email, so this may be a repeat for some)
We went back to meet the rest of the team that will be caring for him while he's in the unit. Everyone I’ve met with seems so kind and positive - and I love that his ex-psychiatrist Dan is the main attending. (He worked with us for ... over three years before he was promoted.) He’s so willing to listen to us and our ideas, made a point of saying in front of everyone else that he remembered that we had a lot of positive good ideas even when it came to things like meds and stuff like that where a lot of parents generally don’t have a lot of specific information. (not that we have any today - but it sure made me feel better to be recognized - especially around people I didn't know.) Much better visit today. Lots of hugs and kisses. He was having a better day today, even interacting with (hugging) one of the other kids in the unit. <3 Am hoping to get things cleaned up around the house this weekend so may not visit until Monday. (plans may change, however, not sure.) Dan made a point of doing the same bludgeoning y’all have been doing - lots of REST and TAKE CARE OF YOURSELF and LET US TAKE CARE OF HIM and CONSIDER IT RESPITE loving foam hammers.
His speech therapist had come to visit and left a note saying she was thinking of us.
Oh! I had forgotten to mention in all the hubbub that on Wednesday or possibly Tuesday he’d lost a tooth - the first one not swallowed! I brought it home in a baggie. (it was in his backpack but it had been taken to the hospital, you know. I brought it home today. So the tooth fairy owes him a stimmie plus another stimmie in interest. (he does not care about money.)
Not sure how to feel. Tired and out of sorts. But selfish as this feels, if things with Sean were a little more stable, maybe it would be easier to focus on myself for a while - to write a book or go back to school long term? Ugh. Am meeting with my rehab counselor on Friday, which I was glad about up until two days ago. I wish I could reschedule except that it was so tough to get this appointment in the first place I don't know what to do. Fuck.
We went back to meet the rest of the team that will be caring for him while he's in the unit. Everyone I’ve met with seems so kind and positive - and I love that his ex-psychiatrist Dan is the main attending. (He worked with us for ... over three years before he was promoted.) He’s so willing to listen to us and our ideas, made a point of saying in front of everyone else that he remembered that we had a lot of positive good ideas even when it came to things like meds and stuff like that where a lot of parents generally don’t have a lot of specific information. (not that we have any today - but it sure made me feel better to be recognized - especially around people I didn't know.) Much better visit today. Lots of hugs and kisses. He was having a better day today, even interacting with (hugging) one of the other kids in the unit. <3 Am hoping to get things cleaned up around the house this weekend so may not visit until Monday. (plans may change, however, not sure.) Dan made a point of doing the same bludgeoning y’all have been doing - lots of REST and TAKE CARE OF YOURSELF and LET US TAKE CARE OF HIM and CONSIDER IT RESPITE loving foam hammers.
His speech therapist had come to visit and left a note saying she was thinking of us.
Oh! I had forgotten to mention in all the hubbub that on Wednesday or possibly Tuesday he’d lost a tooth - the first one not swallowed! I brought it home in a baggie. (it was in his backpack but it had been taken to the hospital, you know. I brought it home today. So the tooth fairy owes him a stimmie plus another stimmie in interest. (he does not care about money.)
Not sure how to feel. Tired and out of sorts. But selfish as this feels, if things with Sean were a little more stable, maybe it would be easier to focus on myself for a while - to write a book or go back to school long term? Ugh. Am meeting with my rehab counselor on Friday, which I was glad about up until two days ago. I wish I could reschedule except that it was so tough to get this appointment in the first place I don't know what to do. Fuck.