picture this spoken in a breathless voice
First appointment: orthopedic surgeon.
Short answer: complete waist of freaking time. Nothing he can do for me. Suggests I go back to rehab clinic for more antispasticity meds. Considering that when I initially went in to rehab I could walk mostly normally (for someone with CP, that is) and actually get up off the floor and use my arms to pull myself up on things and not fall down or have to lean on something constantly, I am saying that the antispasticity meds can go fuck themselves with my compliments, and the botox can help (considering the lack of leg muscle control for the first few weeks after the botox treatments has leflt me in some extremely humiliating situations which I would rather not discuss. All I really wanted at the beginning for all of that was physical therapy. I have the stretches the PT taught me and I have information on water fitness classes. I think I am done with rehab, THANK YOU AND GOOD NIGHT.
Then I came home (no, really, it was actually much easier to come home between appointments) and had decent but not fantastic mexican food, coffee and mini cheesecakes. Went to local lesbian bookstore; did not pick up lesbians, but did manage to get some cards for people and a very nice book on the best buddhist writings of 2008. I'm hoping to get either enlightenment or material for new monk stories.
Second appointment: rheumatology.
They got the test results back. Some of them are abnormal. Now we have to run those tests again. Preliminary diagnosis based on bloodwork and some preliminary questions/facts about me point to sjorgren's syndrome (which wins the award for the least intuitive spelling in an autoimmune disorder) which (i'm guessing) is probably comorbid with some flavor of arthritis given that it looks and feels like my grandmother's arthritis that started when she was about my age. Also I probably have restless legs syndrome and they can give me something for that, which is nice because it feels like lightning-based needles are running through my thighs, which is a bit distracting when you're trying to get a bit of a nap.
So I get tested for that, and I have to go back to the dentist and do tests on my saliva, and eventually I may have to get a cheek biopsy (not looking forward to this part).
But yes. surgeon useless (except possibly in the 'feeling better about not requiring surgery for quite some time' bracket, so not so useless i suppose) and rheumathologists have fun theory that explains things, and the theory has been brought over by (it looks like) Swedish people, which wlil make bork either happy or sad, i'm not sure.
hi, how was your day? the inauguration was cool. ooh, a shiny thing -
Short answer: complete waist of freaking time. Nothing he can do for me. Suggests I go back to rehab clinic for more antispasticity meds. Considering that when I initially went in to rehab I could walk mostly normally (for someone with CP, that is) and actually get up off the floor and use my arms to pull myself up on things and not fall down or have to lean on something constantly, I am saying that the antispasticity meds can go fuck themselves with my compliments, and the botox can help (considering the lack of leg muscle control for the first few weeks after the botox treatments has leflt me in some extremely humiliating situations which I would rather not discuss. All I really wanted at the beginning for all of that was physical therapy. I have the stretches the PT taught me and I have information on water fitness classes. I think I am done with rehab, THANK YOU AND GOOD NIGHT.
Then I came home (no, really, it was actually much easier to come home between appointments) and had decent but not fantastic mexican food, coffee and mini cheesecakes. Went to local lesbian bookstore; did not pick up lesbians, but did manage to get some cards for people and a very nice book on the best buddhist writings of 2008. I'm hoping to get either enlightenment or material for new monk stories.
Second appointment: rheumatology.
They got the test results back. Some of them are abnormal. Now we have to run those tests again. Preliminary diagnosis based on bloodwork and some preliminary questions/facts about me point to sjorgren's syndrome (which wins the award for the least intuitive spelling in an autoimmune disorder) which (i'm guessing) is probably comorbid with some flavor of arthritis given that it looks and feels like my grandmother's arthritis that started when she was about my age. Also I probably have restless legs syndrome and they can give me something for that, which is nice because it feels like lightning-based needles are running through my thighs, which is a bit distracting when you're trying to get a bit of a nap.
So I get tested for that, and I have to go back to the dentist and do tests on my saliva, and eventually I may have to get a cheek biopsy (not looking forward to this part).
But yes. surgeon useless (except possibly in the 'feeling better about not requiring surgery for quite some time' bracket, so not so useless i suppose) and rheumathologists have fun theory that explains things, and the theory has been brought over by (it looks like) Swedish people, which wlil make bork either happy or sad, i'm not sure.
hi, how was your day? the inauguration was cool. ooh, a shiny thing -