Pete Does a Good Thing for AYME and Pogonophobes
I've decided to shave off my beard in May to raise money for AYME - the Association of Young People with ME.
Severe ME: Painful, devastating and debilitating
ME Awareness Week 2008 runs from May 9th - 16 th 2009
Young people from the UK’s largest ME/CFS children’s charity are raising awareness of the real impact of the debilitating condition, during ME Awareness Week, May 9th -16th.
This year The Association of Young People with ME, AYME is focusing on children with severe ME/CFS who are, or have been bed-bound in a darkened, sound-proofed room; tube-fed because they are too weak to chew; too sensitive to be touched; unable to talk and temporarily blind. Withdrawal from mainstream education leads to loss of contact with peers, social exclusion, isolation and loneliness. The need for 24-hour care also puts enormous strain and stress on the whole family.
There is no known cause or cure but we do know that early diagnosis can aid recovery and stop children declining into severe ME/CFS. AYME’s Chief Executive Officer, Mary-Jane Willows said: “We must stop children spiralling into this devastating world of severe ME/CFS. They need to be believed, given prompt access to ME/CFS specialists, diagnosed correctly and given the appropriate care and support.”
I also have the obligatory JustGiving.com page here - www.justgiving.com/petesbeard. If you can't or won't donate, would you mind hassling someone else to do it instead?
Severe ME: Painful, devastating and debilitating
ME Awareness Week 2008 runs from May 9th - 16 th 2009
Young people from the UK’s largest ME/CFS children’s charity are raising awareness of the real impact of the debilitating condition, during ME Awareness Week, May 9th -16th.
This year The Association of Young People with ME, AYME is focusing on children with severe ME/CFS who are, or have been bed-bound in a darkened, sound-proofed room; tube-fed because they are too weak to chew; too sensitive to be touched; unable to talk and temporarily blind. Withdrawal from mainstream education leads to loss of contact with peers, social exclusion, isolation and loneliness. The need for 24-hour care also puts enormous strain and stress on the whole family.
There is no known cause or cure but we do know that early diagnosis can aid recovery and stop children declining into severe ME/CFS. AYME’s Chief Executive Officer, Mary-Jane Willows said: “We must stop children spiralling into this devastating world of severe ME/CFS. They need to be believed, given prompt access to ME/CFS specialists, diagnosed correctly and given the appropriate care and support.”
I also have the obligatory JustGiving.com page here - www.justgiving.com/petesbeard. If you can't or won't donate, would you mind hassling someone else to do it instead?