May 12, 2024 21:10
Well, well, well. Thought I was joshing you, eh? Admit it; for a split second, you thought maybe I was pulling your leg about the whole double transplant thing? Well, that is the kind of magical (i.e. dangerous) thoughts that were going 'round in my head when I went from my first evaluation appointment on March 15th to absolute radio silence. As soon as I got back from a week holiday to New Orleans, I did my due diligence by ringing up the transplant coordinator to let her know I'm back and ready to resume setting appointments.
Fucking.
Crickets.
It were mental; they'd all been up my ass before, why was I suddenly left hanging? I left message after message, emailed my direct coordinator to be told "oh wow that's strange let me check in and get back to you" FUCKING RADIO SILENCE. Like, I was telling me therapist my brain begun to fill in the blanks:
1. this was all an elaborate hoax, probably by my cardiologist because he just loves to tease me?
2. They mixed up my liver results with another patients and they're too mortified / scared I'd sue to admit it without legal representation
3. They just misread my results and turns out it was fine all along! hahhahaha!
4. Someone, somewhere said "no way this girl is sick enough to go through this. try again next year?"
All very unhelpful thoughts, especially when I've been working very faithfully to hype myself up for this whole life-altering transition.
So...after...4? ish? weeks of fuck all, I'm told the head coordinator had to piss off unexpectedly but when she returns, my case is being prioritized. Hoookay. Flash forward to lat week and we are back in business. Only, this woman tried to cop 'tude with me when making my appointments after I told her she had to move one days worth of tests. She was like, "Well, I am going by the dates you previously gave me and said were open."
To which I retorted, "That was before I was left in radio silence for a month."
She could not argue with that and rescheduled.
Thus, the next two months are going to be a wild ride of appointments, volunteer duties, and a much MUCH deserved return to the NYC area. I'll update everyone as I feel up to the task.
health