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Feb 23, 2010 23:53

Sorry, folks ( Read more... )

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kerikochan February 24 2010, 16:34:25 UTC
sounds like we need to plan a dolly meet in Richardson (even a mini one) so you can get your dolly fix. ^_^

As for medical issues, I have some new meds I'm taking that give me crazy nausea so half the time I refuse to take it. So I can kinda empathize with crap side effects from medicine. I am quite surprised that the docs said physical therapy wont help you. I can ask my mom (a speech pathologist who works closely with PTs and OTs) if she knows of anything that PTs or OTs do for patients with chronic pain.

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kerikochan February 24 2010, 16:38:03 UTC
BTW my mom (63) also takes Cymbalta and let me tell you, its like night and day! She's bipolar but it really helped with the cycling and certainly enabled her to handle problems better. This is after her trying Lithium, Prozak and Welbutrin (sp?).

I don't think she experienced any weight gain, of course when she was in her lows she'd comfort eat so if anything I'm sure the Cymbalta helped deter that. ^^;

If you have any questions I can ask her. ^_^

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onnas_baka_gaki February 25 2010, 04:24:13 UTC
I wouldn't use Cymbalta for depression but for pain, which makes me very leary. Prednisone is for pain and it's evil incarnate. I think the Pred side-effects while on it helped kick this into gear and the withdrawal just made the neuropathy kick in.

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kerikochan February 25 2010, 14:14:29 UTC
I'll ask my mom about Tapping and the Nerve Support Forumla. She's been in her field for nearly 40 years so I'm sure she's heard of SOMETHING for chronic pain.

Let me know when and where you'd like a meet up! The dolly market idea steamed from you actually. ^_^ I hope you can either come to the one in March or one of the later ones.

Well if it comforts you at all, when you have to move again you know some good people to call upon. ^_^

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onnas_baka_gaki February 26 2010, 05:11:30 UTC
I'd appreciate you asking your mom about both. Tapping is more for depression so I use it when I start feeling a little anxious.

Definitely need a mini-meet after the Olympics are done with.

Yes, it DOES comfort me a LOT to know you are all there to help us again. But honestly, I want to unpack and settle for a little while. I know living in boxes is partly to blame for my stress, along with all the rest. I refuse to deal with looking at houses now and my stress levels have decreased dramatically.

However, today the neuro looked at my initial EMG/NCS test results and said I was worse than she thought. Thanks for more stress...

I can only hope she thought I wasn't very bad off initially and that I'm not too bad on the neuropathy scale.

I am determined to get better but disheartened by the facts about neuropathy.

*hugs*

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kerikochan February 26 2010, 14:46:13 UTC
I talked to my mom last night. She said that Cymbalta is more commonly used for pain than depression and that it helps with her mild aches and pain. Enough that she notices when she forgets to take it because she starts to hurt again. She also said she didn't notice any adverse side effects, not even weight gain.

I also asked her about using PT for pain and she said there are various ways. So PT will hopefully be an option for you in the future. She also mentioned using TENS therapy.
http://www.healthscout.com/ency/68/240/main.html
She said it was similar to an E pack? I'm not sure what that is.

I hope that helps. ^_^

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onnas_baka_gaki February 26 2010, 17:37:51 UTC
Yes, it helps a LOT.

I've read a lot about a lot of problems with Cymbalta and since I'm so sensitive to medication, it scares me. Losing feeling in my body is currently scaring me more, though.

Could you please ask your mom how many mgs of Cymbalta she takes a day? My neuro prescribed 20mg for two weeks, then 30mg for two weeks then 60mg for two weeks.

And how is her drug sensitivity? I have to be watched to make sure my reaction is not too bad.

After I see the neuro in two weeks I hope I get a better idea what to do. B12 is probably something I'll need to do.

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kerikochan February 26 2010, 18:36:02 UTC
I'll call her tonight when she gets off of work and ask about dosage and sensitivity.

I take B12 supplements! I'm a bit defficient as it is and the new meds I'm on makes me even more so. My doctor recommended the liquid kind (the sublingual stuff). Its supposed to be higher efficiency than the pills. It has done wonders for my energy level. I'm a big fan of vitamin supplements over other pharmaceuticals (if that option is available).

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onnas_baka_gaki February 27 2010, 04:22:15 UTC
Thanks again, K. You make me cry with happiness because you have been so helpful to me.

I'm still going to try to avoid the drugs, if possible. Though I was tempted today since more areas of my feet have decided to go numb for the first time ever today. Naturally, it's the weekend and going to the ER wouldn't do me any good. I just have to wait for the test results to get done.

C got me some B complex tonight. I lost a lot of my dinner tonight due to a calcium pill gagging so I took another one. So I'm trying to get back to my vitamins and other supplements again.

Are you doing calcium with D? If not, I highly recommend it. It is also known to help you lose weight - it did for me!

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kerikochan February 27 2010, 07:03:17 UTC
oh snap! taking calcium helps with weight loss you say?! I may be making a trip to CVS tomorrow. ^_^ Thanks for the heads up! The meds I'm currently taking is helping with my body to use the sugar I eat more effectively. I never knew before that after eating a meal you aren't supposed to get an intense sugar rush then crash hard after about an hour. It wasn't until about 2 days ago I realized this (as the meds have allowed me to eat and have energy, no rush and no crash) that I turned to Kyle and was like "is this what its like you?". He was just kinda like "umm yes." ^0^
Still anything to aid in pre-Japan weight loss and a vitamin at that is something I'm willing to try! Thanks!!

I wasn't able to call my mom tonight, but I'll try again tomorrow. ^^;

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onnas_baka_gaki February 27 2010, 14:53:07 UTC
Yes. I didn't know about it until after I noticed it was happening and there was a news story about it on TV. I was taking 1200 Calcium citrate with D a day for my osteoporosis. Citrical

I stopped a year ago (along with all my other supplements) when I needed to see what was going on health-wise and was choking when I took them. I'm going to get back on it, but will probably need to cut the pills in half to make them easier to swallow.

My mouth is so dry due to the neuropathy so food sticks, even when I drink a lot and take a drink before eating something.

http://www.webmd.com/diet/news/20000417/calcium-low-fat-diet

http://weightloss.about.com/cs/eatsmart/a/aa051603.htm

http://thyroid.about.com/cs/dietweightloss/l/blcalciumdiet.htm

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onnas_baka_gaki March 2 2010, 05:29:14 UTC
More about B12 - take it on an empty stomach and don't eat until an hour after to insure it gets absorbed.

More later - I'm exhausted from doctor stuff today and still have to do more tomorrow.

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onnas_baka_gaki February 25 2010, 04:21:34 UTC
Doll therapy would be good. Being around people I trust and will help me talk through this helps, too. Thanks for being here.

Currently I'm not really in pain but being irritated by the shooting pins and needles in my feet. And I hate the anxiety that's illogical.

No, the docs haven't said physical therapy won't help me. They just aren't willing to give it to me at the moment. The neuro wants me to exercise and try yoga or swimming (hate swimming).

Is your mom familiar with Tapping or WSN® Nerve Support Formula?

I've started doing tapping which helps sometimes. I think I just need to do it over and over in one session to help.

I'm also going to look into WSN® Nerve Support Formula.

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