One of the things that is hard about having CF is that we are not supposed to come into contact with one another, literally, for fear of bacterial transmission.
As a result I have looked to livejournal and have joined a CF community there.
It is always great talking to others who have similar experiences.
One of those people, Eva Markvoort (from Vancouver), has documented her experience waiting and getting a double lung transplant, at 23.
Titled 65_redroses (her LJ username and a play on 65 roses, see more below) it is being featured at the Toronto International Documentary Film Festival and has been picked up the CBC's The Lens (but I can't find info for it on the website).
I hope I can get the chance to see it.
Anyone in the Toronto area should go see this in May. I am sure it will bring tears to your eyes but also educate and inspire.
http://schedule.hotdocs.ca/index.php/2009/film/65_redroseshttp://campaigns.hellocoolworld.com/index.cfm?campaign_id=11 Go here for an explanation of 65 roses:
http://www3.nbnet.nb.ca/normap/sixtyfiveroses.htm