(no subject)
My neuralgia just came back. It's funny.. my mind's been reminding me about it for about a week now every now and again when I eat. It's like I get a shock without the shock.. ie my brain says 'shock', but there's no pain. It's so fucking interesting how the brain works.. it knows what causes/precedes a shock, takes those physiological signs and turns them into a conscious thought. It's pretty commonly said that pain is the indicator of a problem, and without it we wouldn't know something was wrong. But even when I can't feel the pain I know something just fired in my brain that shouldn't. And that time I was asleep and knew for what felt like bout 10 seconds that I was about to have a shock, then I had one. So yes, it's interesting.
It's also very fucking depressing.. and I am not looking forward to another few months of stupid medication, being even stupider and dopey-er than normal, eating soup and mashed weetbix and more fucking soup, yelping/screaming in front of random people, not being able to talk, drink or kiss.
Not gonna start the meds today. I'm not sure what'd happen if I combine them with what I'm doing tonight.. so not gonna take a chance. Anyway, even though they take a few weeks to take full effect, I have a few weeks before the neuralgia is completely debilitating, so it should coincide.
But the real reason for this post (apart from having a whinge) is that I know how few people actually have this condition, and I want to help do something about it.. both for me and for everyone else in the world who shouldn't have to go through this bullshit. I want to take part in some research or something, but I don't know who I could contact to find out if anyone's actually doing any research on it. Anyone got any ideas?
It's also very fucking depressing.. and I am not looking forward to another few months of stupid medication, being even stupider and dopey-er than normal, eating soup and mashed weetbix and more fucking soup, yelping/screaming in front of random people, not being able to talk, drink or kiss.
Not gonna start the meds today. I'm not sure what'd happen if I combine them with what I'm doing tonight.. so not gonna take a chance. Anyway, even though they take a few weeks to take full effect, I have a few weeks before the neuralgia is completely debilitating, so it should coincide.
But the real reason for this post (apart from having a whinge) is that I know how few people actually have this condition, and I want to help do something about it.. both for me and for everyone else in the world who shouldn't have to go through this bullshit. I want to take part in some research or something, but I don't know who I could contact to find out if anyone's actually doing any research on it. Anyone got any ideas?