My journey continued...
2013 arrived & with it the hope that I would get some answers. I went to my 2nd nuerologist for a 2nd opinion. His verdict - Beneign Fasiculation Syndrome, Chronic Fatigue (finally!!!), & probable Celiac Disease.
Going gluten free was one of the hardest things I've ever done, but also one of the best. Within weeks of starting the gluten free diet the cramps started to disappear, I'd lost 28kgs the previous year with not being able to eat (I was 87kgs at my first weigh in at the hospital, and 59kgs by the time I saw the 2nd nuerologist), and suddenly I could eat again. I could eat without feeling nauseas, without throwing up, without being attacked by agonising pains through my stomach.
Side benefits including my dermatitis clearing up, my acne clearing up, my hair growing thicker, my finger nails growing stronger & longer, I regained some energy. I could finally be me again. But it was a new me. I started doing pilates & yoga, I started walking to work, I started drinking more water, I ate healthier. I started to get in to cooking & trying new foods. It was wonderful, and I tell you know if I had the change to eat gluten without it affecting me I don't think I'd go back, I'm more concious of what I'm putting in my body now. I do wish however that I didn't have to worry about cross contamination, or what beauty products contain wheat, but oh well, the benefits are by far & away worth it.
Things were great for several years, I didn't seem to do too many injuries to my body. I progressed with pilates, and ended up doing pole dancing as well. Which ultimately was my downfall & what lead me to being diagnosed.
I loved pole dancing, don't get me wrong, but I'd had ongoing issues with my shoulder, and been to the doctors about it but got told that I just needed to move it, and that I was wasting doctors time with silly things like that & requesting food allergy testing (even with being gluten free I had trouble digesting things that the dietician I'd been to see had said was impossible, like high fibre greens, sugar & tap water). I'd listened to her & by the end of 2015 I'd done some serious mischief to my shoulder.
The summer of 2015-2016 my hand seized up multiple times, and by February my back had joined in, and I spent several weeks unable to do anything except lie on the floor with my legs slung over the couch while I tried to get in to see a chiropractor. And he changed my life.
He told me he thought I had a connective tissue disorder, called Ehlers-Danlos Syndrome. This condition affected the collagen in my body & meant that injuries wouldn't heal properly. Due to dislocating my shoulder, and then the strain I put it under through pilates, yoga & pole dancing, I'd damaged the rotator cuff.
After my session I immediately started looking into Ehlers-Danlos Syndrome, which led me to connecting all the dots.
Going gluten free was one of the hardest things I've ever done, but also one of the best. Within weeks of starting the gluten free diet the cramps started to disappear, I'd lost 28kgs the previous year with not being able to eat (I was 87kgs at my first weigh in at the hospital, and 59kgs by the time I saw the 2nd nuerologist), and suddenly I could eat again. I could eat without feeling nauseas, without throwing up, without being attacked by agonising pains through my stomach.
Side benefits including my dermatitis clearing up, my acne clearing up, my hair growing thicker, my finger nails growing stronger & longer, I regained some energy. I could finally be me again. But it was a new me. I started doing pilates & yoga, I started walking to work, I started drinking more water, I ate healthier. I started to get in to cooking & trying new foods. It was wonderful, and I tell you know if I had the change to eat gluten without it affecting me I don't think I'd go back, I'm more concious of what I'm putting in my body now. I do wish however that I didn't have to worry about cross contamination, or what beauty products contain wheat, but oh well, the benefits are by far & away worth it.
Things were great for several years, I didn't seem to do too many injuries to my body. I progressed with pilates, and ended up doing pole dancing as well. Which ultimately was my downfall & what lead me to being diagnosed.
I loved pole dancing, don't get me wrong, but I'd had ongoing issues with my shoulder, and been to the doctors about it but got told that I just needed to move it, and that I was wasting doctors time with silly things like that & requesting food allergy testing (even with being gluten free I had trouble digesting things that the dietician I'd been to see had said was impossible, like high fibre greens, sugar & tap water). I'd listened to her & by the end of 2015 I'd done some serious mischief to my shoulder.
The summer of 2015-2016 my hand seized up multiple times, and by February my back had joined in, and I spent several weeks unable to do anything except lie on the floor with my legs slung over the couch while I tried to get in to see a chiropractor. And he changed my life.
He told me he thought I had a connective tissue disorder, called Ehlers-Danlos Syndrome. This condition affected the collagen in my body & meant that injuries wouldn't heal properly. Due to dislocating my shoulder, and then the strain I put it under through pilates, yoga & pole dancing, I'd damaged the rotator cuff.
After my session I immediately started looking into Ehlers-Danlos Syndrome, which led me to connecting all the dots.