they probably don't have anyone with autism in the organization "Autism Speaks" because most autistic people can not communicate or speak, but the organization is made up greatly of parents or family members of those with autism. and yes, great pain does not come from autism because it is not a physically painful disorder. actually the autistic most likely do not experience much pain or grief in their disease, but probably the true pain of autism is in those who care for their family members and children for autism their entire lives and have no hope for a cure or to ever hear their child say their name.
also, it isn't really a 'witch-hunt' situation, it is jut that they are redefining the disorder on a regular basis, and with the new constraints there are many more children with technical autism that may have been previously seen as a speech disorder. since autism is a spectrum disorder, it is constantly being updated. but they key to helping its onset is to catch it very early, so studies in young adults and children are the most important. most times parents should notice autistic symptoms before a child is 4 years old or else it is usually already too late.
sorry, there are a lot of misconceptions about autism, i was just clearing that up.
i have a sister with autism, but it looks like you do know what you're talking about (i read some past entries). i'm sorry if this offended you, i apologize for sounding like i knew more than you did. you can delete this if you'd like.
"they probably don't have anyone with autism in the organization "Autism Speaks" because most autistic people can not communicate or speak"
Bullshit. Have you seen the asperger community? That community happens to have the very lowest-functioning people (including those who are non-verbal) all the way up to those who can support themselves. Also, I'm autistic, and I can talk just fine. Hell, I did call center work for four and a half years. My brother is also autistic, and he can also talk.
"actually the autistic most likely do not experience much pain or grief in their disease"
If you knew anything about autism, you'd know that autistic people almost always have some sort of sensory sensitivities. High-pitched noises, bright lights, light touches that wouldn't bother a non-autistic person can very severely hurt an autistic one. Not to mention the emotional suffering caused by other people who are so wrapped-up in "the fight against autism" that they neglect to understand that
Don't fucking preach to me about the misconceptions of autism.
like i said, sorry. i wasn't preaching, and i wasn't being confrontational. my sister has it, that's all i was going from. just like you see misconceptions and feel the need to correct them, as did i. i already said sorry for making a mistake thinking you didn't understand, i think that should be enough.
I had a professor in college who did not talk until he was six years old. I have a boyfriend who did not talk until he was three. I have a friend who types but does not talk, she's an eloquent writer but speaking is too complex for her to coordinate so she only makes seven verbal sounds, such as "no," for those situations where she must. I'm Autistic, and I don't suffer from Autism at all; I suffer from being a member of a misunderstood minority group that is more different from the surrounding population than any other minority group that society has ever had to integrate; I suffer from that 1:150 statistic. When I see something that says, "1 in 150 children have Autism," my first thought is, "Yes, that number is far too LOW, we need MORE Autistic people if we're ever to gain acceptance in society." My sensory issues, which, yes, are painful...I need sunglasses to go outside most days or else my eyes hurt; my ears hurt over noises that are normal to most people, so I carry ear plugs; being tickled is painful to me...I have these sensory differences that I've had all my life...yes, that makes Autism painful, so I can definately see where Necrotica is coming from in that respect. I don't find Autism something that need to be cured; I've studied it in-depth and the only way you're going to cure it is probably selective abortion of Autistic fetuses, because a fetus is Autistic from around the 20-23rd day of pregnancy (Scientific American, February 2000 edition), the same time that the ears form, so why silly ideas about it being caused from an ingredient that used to be in vaccines should be blown out of the water except that some parents want a scapegoat, they don't want to admit that genetics caused Autism in their child.
I haven't read this whole thing yet but I like to set the record straight whenever possible. Autistic people suffer from sensory issues, most of which could be avoided if we were given proper accomodations, and if we lived in a world where they were expected and not dismissed. Autistic people suffer from discrimination, ignorance, and an unwillingness to give us the tools we need to make it in this world. There are some Autistic people who are so "low-functioning" that people can't find a way to get through to them and allow them to start learning. But "developmentally delayed" does NOT mean "no development;" we only need the right tools and the right environment to get us started. Another thing about us: the average human brain changes at a certain age, undergoes "brain pruning" where some areas get smaller so others can get bigger. Our brains don't do this. In some ways that is such a blessing because those kids whose brains are so undeveloped still have a chance at age 40 to develop the skills they missed at age 2 because no one knew what to do to help them develop. I know one Autistic girl who at age 12 wore diapers and couldn't communicate or anything, and she was in a neglectful home. She was adopted by someone who was willing to work with her and now she is developing rapidly, making up for about 3 years with each year she lives. She's behind her age mates, and will never be like them, but the point is that in the right environment a 'low-functioning' person will develop! And maybe you never do find the key to what needs to be changed, and maybe you do. My mom had two Autistic children and we both grew up to finish college and find jobs, but that was because of the environment we lived in. In another environment, we wouldn't have turned out so well. The environment that was good for my sister and I may not have been so good for other Autistic people who needed something else. Autism is so varied.
What are you talking about? I have a handful of autistic friends, and they are one of the most intelligent, passionate and interesting people I have had the pleasure of knowing. They most certainly can say their own name! LOL. You should know, especially if you have a sister who is autistic, that there are low and high functioning autistic people/children. Sure some are really bad off, but there are lots and lots who are able to get through life on their own. If you want to see all sorts of autistic people, look on the internet. It's a great way to communicate with others and learn.
The part about autistic people not experiencing pain. Oh my god. That's just a horrible generalization. Maybe you think your sister doesn't experience frustration, sorrow, pain etc... But don't assume every autistic person is unable to experience that.
Do your research, seriously, no offense, but for the sake of your sister, do some research.
I experienced terrible pain as a child, but no one could see it because I didn't know how to express it at the time. Everyone thought I was fine. It was a very bad time in my life that STILL affects me to this day.
Yeah, I'm mostly verbal and communicative, and yet even I am frequently misunderstood, people thinking there's something wrong when there's nothing wrong, and vice versa, thinking things are just fine when I'm not fine.
also, it isn't really a 'witch-hunt' situation, it is jut that they are redefining the disorder on a regular basis, and with the new constraints there are many more children with technical autism that may have been previously seen as a speech disorder. since autism is a spectrum disorder, it is constantly being updated. but they key to helping its onset is to catch it very early, so studies in young adults and children are the most important. most times parents should notice autistic symptoms before a child is 4 years old or else it is usually already too late.
sorry, there are a lot of misconceptions about autism, i was just clearing that up.
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sincerely,
random girl
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I would think so, since, after all, I AM autistic.
"i'm sorry if this offended you"
Damn right it did.
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"they probably don't have anyone with autism in the organization "Autism Speaks" because most autistic people can not communicate or speak"
Bullshit. Have you seen the asperger community? That community happens to have the very lowest-functioning people (including those who are non-verbal) all the way up to those who can support themselves. Also, I'm autistic, and I can talk just fine. Hell, I did call center work for four and a half years. My brother is also autistic, and he can also talk.
"actually the autistic most likely do not experience much pain or grief in their disease"
If you knew anything about autism, you'd know that autistic people almost always have some sort of sensory sensitivities. High-pitched noises, bright lights, light touches that wouldn't bother a non-autistic person can very severely hurt an autistic one. Not to mention the emotional suffering caused by other people who are so wrapped-up in "the fight against autism" that they neglect to understand that
Don't fucking preach to me about the misconceptions of autism.
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I haven't read this whole thing yet but I like to set the record straight whenever possible. Autistic people suffer from sensory issues, most of which could be avoided if we were given proper accomodations, and if we lived in a world where they were expected and not dismissed. Autistic people suffer from discrimination, ignorance, and an unwillingness to give us the tools we need to make it in this world. There are some Autistic people who are so "low-functioning" that people can't find a way to get through to them and allow them to start learning. But "developmentally delayed" does NOT mean "no development;" we only need the right tools and the right environment to get us started. Another thing about us: the average human brain changes at a certain age, undergoes "brain pruning" where some areas get smaller so others can get bigger. Our brains don't do this. In some ways that is such a blessing because those kids whose brains are so undeveloped still have a chance at age 40 to develop the skills they missed at age 2 because no one knew what to do to help them develop. I know one Autistic girl who at age 12 wore diapers and couldn't communicate or anything, and she was in a neglectful home. She was adopted by someone who was willing to work with her and now she is developing rapidly, making up for about 3 years with each year she lives. She's behind her age mates, and will never be like them, but the point is that in the right environment a 'low-functioning' person will develop! And maybe you never do find the key to what needs to be changed, and maybe you do. My mom had two Autistic children and we both grew up to finish college and find jobs, but that was because of the environment we lived in. In another environment, we wouldn't have turned out so well. The environment that was good for my sister and I may not have been so good for other Autistic people who needed something else. Autism is so varied.
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The part about autistic people not experiencing pain. Oh my god. That's just a horrible generalization. Maybe you think your sister doesn't experience frustration, sorrow, pain etc... But don't assume every autistic person is unable to experience that.
Do your research, seriously, no offense, but for the sake of your sister, do some research.
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