Jun 13, 2006 18:24
I haven't written in here for a long time. I've been feeling bad. Although the numbness/tingling/pain in my feet and legs has subsided a great deal, I am unfortunately now going slowly blind in my left eye. I credit this bad health to the failing Medicare system and their horrendous $3600 out of pocket HELL they are putting me through. I had no choice but to try and skip 2 months worth of medication (March and April) in the false hope that I might get financial aid from one of numerous organizations. No such luck, not happening. My savings account is going down the drain in a steady flush. I might as well throw my life savings into the fireplace and watch it burn at this rate. Me, bitter? You betcha. I'm as pissed off as all hell. But when you're between a rock and a hard place, there's not much you can do.
So what are my options? Right now.. mom is pushing me going into the hospital so I can be hooked up to a steroid drip. Been there, done that before. I'm already overweight, I'd much rather not. I do have my meds now. My meds are doing all they can do, there's not much medicine options for MS. And like I said, my savings account is being depleted fast. The shots I take are now going for $1564 a month instead of $1350. Thats because there is no financial aid to be found and people can't afford it so the medicine company raised the price. I called Berlex Industries (they make Betaseron, the shots I take) and they are completely doing away with the financial aid program they've had for years due to the Medicare nightmare. Lucky me. I don't have money for meds, and I doubt I have it for a hospital visit. Yes, I do have medical insurance, but the out of pocket costs are literally killing me.
The sad thing is... me and Rob were actually looking at houses in earnest this year. We were hoping of moving in together (finally) into a slightly bigger place. A fixer upper would have been fine. But we can't even do that now.