May 26, 2016 11:05
Camping preparations have begun. Cleaning out the car, packing necessities, linens and major food prep. With our dietary restrictions we have to plan out every single meal because restaurants are not an option. I printed off some cute vacation activities for Niamh and am packing some games for the kids. The campground is only 90 min. away but there's plenty to do and see. I will be going in a pool for the first time in over a year. I'm a bit nervous about it, given my skin issues, but all I can do is hope all will be ok.
I spoke to my mom more about Florida. She is going to use her timeshare for a week, which means less money we have to spend on a hotel! She's also offered to rent an SUV. Again, more money we will be saving. Looks like we will be spending the most on flights and four theme park days. We would also like to go to Miami for the beach and a day at the zoo. It's been 16 years since I went to Florida. I'm going to embrace the warmer temps come late Oct.
A couple days ago Aidan started asking questions about Anthony and my working. He knows I do Reiki and sell eggs + honey but he asked if either of us will be working outside of the home. I'm going to set aside time today to explain a) how we're able to live without Anthony working. Aidan knows nothing about disability benefit and b) when I plan on working outside of the home. I'm not against working outside of the home but it will have to be when I know Anthony is capable of meeting all the kids' needs.
Anthony just told me today his legs are bothering him more and more. His mystery leg symptoms are the direct result of treatment he got in the US. No one can explain the pain, numbness or why one keeps losing feeling entirely. The increasing symptoms are leading to less physical activity for Anthony, which he finds upsetting- as do I. We used to go for bike rides and short walks. I don't expect him to ever be able to ride a bike but even a leisurely 20 min walk is often too much :(
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