Guilt and the Perpetual Patient (or: You're Doing It Wrong - Always)

[moominmuppet]

I just said this over on FB, and it got me ranting in my head on the topic again:

Just talked to hr again, trying to navigate this whole fmla, ada, short term disability, don't even know mess. Feel so helpless when I can't manage to get a straight answer on anything. Call back tomorrow, talk to your doc about that, no don't bother requesting a

Comments

[moominmuppet]

More ranting from FB, tagging it on over here (I try to maintain synchronization; I have a few important-to-my-life people who only read via LJ

[moominmuppet]

[Comment: Exactly. Everything in my life is "comorbid" -- disorders that are likely related in some way because they show up statistically more frequently together than would otherwise be expected.]

[moominmuppet]

More comments:

Kit: Yeah :/ I wonder whether it would be useful to describe fibro as the core condition and relate everything else to it (or similar idea)?

Sarah Young That's generally how I do it for my FMLA, but HR gets persnickety about it randomly. And almost always how I do it with medical staff, although this summer, with mania and migraine being my two biggest problems, it's more confusing if I do it that way, for once.

Sarah Young TOO MANY COMMAS.

[moominmuppet]

And more:

Kit Bah. And, of course, these sorts of symptoms are exactly the kind to make filling in forms more difficult in the first place.

Sarah Young Or calling about stuff. HATE HOLD MUSIC!!!!!!!!!!!!!!!

Kit Or worse, trying to leave messages on answerphones.

Sarah Young Oh, for extra confuse-the-staff: the random major eczema explosion I'm trying to deal with (prescription hydrocortizone is now mostly controlling it, but only if I slather myself twice a day; I tried tapering down, no good)

Kit Gah. I want a brain transplant, or something.

Sarah Young What's kind of funny, and makes me kind of proud of myself on days like this, is that my body can fuck with me so much and I can still love it and all its imperfections. I've pulled off some accomplishments here and there in my life, but this one is remarkably important to me, and has felt like Big Stuff since I managed it.

[zeldajean]

This, so much:
Sarah Young What's kind of funny, and makes me kind of proud of myself on days like this, is that my body can fuck with me so much and I can still love it and all its imperfections. I've pulled off some accomplishments here and there in my life, but this one is remarkably important to me, and has felt like Big Stuff since I managed it.