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[misledyouth00]

 Lyme dr. is disappointed that I'm not responding to any treatment. YOU AND ME BOTH, LADY.
And just generally seems confused. Really, you're supposed to be way good with a disease that's fucking sneaky and hides in different parts of your body so you can't eradicate it or at least have a fuck hard time kicking its ass back into remission.

So her

Comments

[vanessagalore]

Check that book out. Really good guide to supplements too. I saw that you were vegan which makes it hard. Sugar supposedly feeds the lyme bacteria and also increases the possibility of yeast infections. And starchy stuff turns into sugar when you eat it. I've been low-fat, hardly any red meat for years...and now I'm basically doing Atkins and I lost 15 pounds in less than a month.

I've had severe breast problems since the beginning of my Lyme thing. Either Lyme screwed up my hormones (which it can do, because it makes your thyroid act up, which screws up every other hormone) or it's the co-infection Bartonella (which I definitely tested positive for). I found a couple studies that say that Bartonella can cause "Pseudo-breast tumors", which pretty much is what I got (benign tissue overgrowth, or something, none of the doctors can agree). So they took out one big chunk last December, and now they're taking out another one on Monday. I've been really pushing to get a sample from my breast excision sent for Bartonella testing at a special lab. But my doctors are all like, "But Bartonella is cured by 2 weeks of antibiotics." Seriously, they're morons. All they give a crap about is cancer--I'm on my 7th breast surgeon, before I finally found one that would sort of try to help me, between rolling her eyes at the *hormonal* patient. But even my gyno admits that you don't usually present with *20* areas of concern in your breasts overnight.

My cat had Bartonella too, he was "highly" positive, and he died mysteriously about 10 months ago (about a year and a half into my saga). I got him tested as soon as I was diagnosed, because I saw that cats can be a reservoir. He was treated with 3 weeks of antibiotics. He never had any symptoms before he died, I just found him dead on the floor one day.

I do think you should check out that diet. I can't eat any soy products because of my boobs, but maybe you could come up a low-glycemic diet that's vegan?? Sugar is the big thing to watch out for, and it basically means you can't buy any prepared foods, because the lovely agricultural companies put sugar and salt in everything to make us addicted to their products. Also, if you eat a lot of wheat, eliminating that from your diet for a short period is worth a try, because, believe it or not, celiac disease can be confused with lyme.

If I end up doing IV, I may want to ask you about that...I think for me, since this has going on for so long, I'd be on IV for a very long time, which is very, very scary. I don't have family or a boyfriend, so I don't know if I can do this by myself.

[misledyouth00]

Really? I'm fighting the yeastbeast right now but I haven't really increased my sugar intake at all. I'm more of a starch lover.

I've always had a fucked up thyroid so I really wouldn't notice lyme doing anything else. I have Hashimoto's syndrome so that it constantly fluctuates. So even before all this, I had to get my blood tested every 3 months. UGH THAT'S AWFUL THOUGH about the tumors! Seriously, that made me shudder. You win with the worst.

I don't know if I've been tested for Bartonella before but it sounds pretty common. That's awful about your cat, I'd be crushed when/if the beast ever dies. My dog has lyme too but shes good with just one round of doxy.

I CAN'T EAT SALT!? I DON'T NEED TO WALK, I NEED TO EAT DELICIOUS DELICIOUS SALT!

You haven't tried IV yet? I just got tested the other day and its STILL in my blood so I might end up going back on my third round of IV. How long would you be looking at being on it? I've been on it both a month at a time. The mid line hurts way more than the PICC. Because the mid line just a regular nurse puts it in in your house. The PICC, they do it at the hospital and they use some machine to find an exact vein so no ones repeatedly sticking you to find it. I barely felt that. Inside, it does hurt if you've never done it before. I could literally FEEL it in me and it was weird to lay on it too. Bathing you gotta wrap it in cling wrap and with a bag and do your utmost to not get it wet. That's awful you don't have people to help you though. I really feel bad for you, I really take it for granted being able to have my family and husband. I don't know what to say to that but I hope it doesn't come to that for you and wish ya luck!