Nov 10, 2012 16:24
I was just rendered breathless (as in it sounded like I ran a few blocks full sprint) due to TAKING A SHOWER.
This is Fibromyalgia/Chronic Fatigue Syndrome, guys. Getting exhausted doing such a mundane thing. Wash/condition hair, wash body, shave legs. EXHAUSTION.
I haven’t even tried to get up to blow dry my hair yet. (IT’s too cold not to, really. I can’t just air dry in the winter) I want to cry. Really and truly sob because this is the worst fucking feeling.
Being helpless in your own body, your own body a cage of pain and tired that limits you in all you do.
This is why I feel like a worthless person. This is why I get upset when someone tries to joke “You don’t LOOK sick!” in some skewed attempt to make me feel better?
I may not ‘look’ sick, but I feel it. Every day, even on the ‘good’ days, even on the GREAT ones, I feel my limits. I feel my weakness.
And I hate it.
fibromyalgia,
disability,
rant