Done Since 2021-06-27
I don't know where in Hell this last week went. But given last weekend's heat wave it was probably somewhere in there.
The air conditioner I ordered just before the heat wave arrived Wednesday, just after the heat wave. Go figure. But it's installed now, and ready for the next one.
E and (husband)M came up Tuesday to pick up their boxes of things from Mom's apartment; they also selected some artwork to take home. Glad that it's getting a good home. Between and the box that my cousin Mark picked up last week, there is considerably more space in the garage now, but we still have way too much Stuff.
Colleen had a video appointment with a UW dietician (Monday -- useful) and visits from Eden Home Health for OT (Tuesday), PT (Wednesday -- including a well-deserved scolding), and nursing (also Wednesday, for a catheter change). Which did not go well -- they came back Friday to try to fix the leakage, but instead managed to re-open the fistula; Colleen is now in the ER in Coupeville awaiting transfer to a UW hospital in Seattle. She did not get a video appointment with her doctor, also scheduled for Monday -- he still is not doing video. WTAF? We're going to have to Have Words with WhidbeyHealth.
I spent a lot of yesterday feeling rather miserable. Depressed? Discouraged? Except while visiting with Colleen, when I mostly felt worried. A little music helped, as did a second visit to Colleen after dinner, but still... In other medical misery I appear to be having quite a lot of pain in my right hip. WTF?
I guess that's where the week went.
For links, you may be interested in "My Quest for Sadness" (about alexithymia -- probably a more serious case than mine, but it's hard to tell because alexithymia).
The usual content warning for medical details and bodily fluids under the cut. Would you prefer that I leave those in, or filter them out (which would make these posts considerably shorter)? Inquiring minds... Answer in comments if you have a strong preference either way.
Notes & links: 0627Su & awake 2:15ish; / 2:15 cleanup. +cath. leakage * Up 6:50; S=7:18; shower / 7:30ish major+ cleanup; liquid, _not_ cath. leakage * went out 8ish to get the mail. Already pretty warm. ~ 15min: tried to put (space blanket)aluminized mylar over the skylight; neither S nor I felt secure enough on the stepladder to do it. @ My Quest for Sadness - The New York Times alexithtmia. More severe than me? @ Download for TL-PA7020 KIT | TP-Link * 15min: set up powerline adapters -- gw and the box room. tested with Mom's iMac % meloxicam 5:30ish with evening drugs % fell asleep in my chair around 9ish / cleanup 9:30ish. more like a wet fart : the iMac apparently doesn't go to sleep when it has an ethernet connection. Responds to pings, anyway -- doesn't seem to have sshd running. Need to enable it. / major cleanup 11ish % I am having trouble coping, and I let it affect what I was saying. shouldn't have 0628Mo & Up 5:30ish; apparently woke earlier and didn't put mask back on / 5:30ish major+++ cleanup - very liquid; change cloth pad (fortunately just top one) % 6:15 shower; acetaminophen @ qca/open-plc-utils: Qualcomm Atheros Open Powerline Toolkit. Updating the Powerline adapters in my home network | Fitzcarraldo's Blog Using open-plc-utils in Linux with Powerline (HomePlug) adapters * 7:45 sign in for 8am UW nutritionist telemedicine - sable or my phone -> Mediterranean diet. Oatmeal, split pea soup, refried beans okay. Needs 90g protein/day, 2K calories with fistula. Soluble fiber x figure out what to do about the upper endoscopy scheduled for next Tues. at Swedish -> she cancelled it Friday when they called with a reminder % use box room AC to cool down as needed / Dr. Dixon's office called. Still doesn't do telehealth -- WTAF?! -- but RN will call. I also interrupted and insisted on their sending orders for a cath change to Eden / V did a cleanup around noon ~ 2pm Colleen Dr. Dixon -> : (nurse)Christie(sp?) at Dr. Dixon's office left a message -- 11:16 apparently -- I didn't hear it ring -- and said to call back. They're not answering their phone and their voice mailbox is full. -> got through ~2:17. High-order bit was the catheter changes. / 6ish minor cleanup (wet fart) % p=4.5 right hip * retrieve m's toothbrush and toothpaste;... 0629Tu * litter boxen * Up 5:50ish; BP=114/70, P=56, p=2, S=7:00; p=3.5 R hip / 1400ml in bag : apparently my phone was on Do Not Disturb -- moved the button to make it less accessible, and turned off the DND-while-docked feature of the charging stand % mouse RSI pain base of left thumb -> diclofenac sodium topical gel The last few times I used it it worked pretty quickly / 10:45 Cristie called to say Eden have scheduled a catheter change for tomorrow * water shutoff * 12:45 (OT)Matt -> 1:25 not here yet -> 1:30ish goals: stand up and put on Depends; toilet, shower; walk to LR chair; upper body * E picking up boxes (called 1pm to say 1.5 - 2 hours) They also selected a little more art - Guardian, Sandbox, Rohan, and a couple of others Especially glad that they wanted "The Last Muster of Rohan" since it's large, unframed, and not in the set we particularly want to put up here. Apparently I did give E the other copy of Mom's memoir, so the one I have is for R / 10:40ish major cleanup; liquid 0630We & awake 3:30ish; / cleanup, some evidence of cath. leakage % 3:50 acetaminophen, heat. # should take the pain pill _before_ starting cleanup. * Up 6:30ish; S=5:48; back exercises & added make rules for local symlinks .mm.done and .MM. The stuff one thinks about at three in the morning... / 8:30ish major+++ cleanup, liquid. / Dr. Dixon's office (robot?) called with a reminder to set up an appointment problematic as long as Dixon doesn't do video / 10-10:30 (PT)Suszann -> she needs to exercise. Eat meals sitting on edge of bed. -> for shoulder: diclofenac 1% gel (Voltaran et. al.; now OTC), CBD (cannabidiol) cream 500mg, aspercreme. The diclofenac looks like the best bet. / 12 - 12:30 (nurse)Donna for * catheter change and x blood draw / call from Express Scripts asking about renewal for Budesonide; having them check with Dr Dixon about pantoprozol and metoprolol -> follow up with web message to Dr. Dixon : air conditioner arrived. * email Mom's memoir to the kids * unbox air conditioner. Help from S getting it off the bottom styrofoam block. / 8:30 cleanup. semi-liquid. % wiped out / 10:50 600ml in bag 0701Th * Up 6ish; S=6:16, BP=121/74, P=62, W=200.8; * 11am (Social Worker)Misty <- transportation is a big problem at this point -> we're screwed. Buy a van. <- ... and Dr. Dixon not giving phone appointments -> we're probably screwed ~ set up a powerline tap at the desk -- mostly doesn't work. And South5 has become very flaky. ARP? * SL: omeprazole or other acid reducer for Colleen, briefs, eggs lunch meat, ~italian bread, Parisian Star brand sourdough, sliced {swiss, cheddar}, shredded cheddar, blue cheese crumbles, seedless rasp. jam, parsley, cucumbers, roma tomatoes, 2# ground beef, earth balance vegan sticks, 2 red onions, miracle whip, chicken {thighs, tenders}, almond milk, stevia x pasta {linguini, rotini, shells}, sherbet, chocolate ice milk, croissants % depressed, despairing, out of spoons. Overdrawn at the spoon bank. % ?9:15ish very sleepy # note to self: do NOT try to drive after dark on low-sleep days 0702Fr & Awake 3:55; S=5.2; gave up trying to get back to sleep 5:15 -- mostly politics Ticia very cuddly % now it seems to be my _left_ hip that's hurting. % 6:50 definitely the right hip again now / 7ish minor cleanup -- just cath. leakage. Changed top sheet * 15min: wap1 (south5) now working with powerline. Not clear that it's any faster. gw and wap3 (north) are very out of date (2015); should upgrade / 9:50ish Donna and Amanda to fix Colleen's catheter. -> not getting anything in the bag except a little blood -> recommended ER in that case * take S to makerspace -- V will pick up. * 911 called 1:30ish (0702)Admitted(~) to WhidbeyHealth (still in ER waiting for transfer) * installed air conditioner, set up app. just duplicates the controls. Not clear how to show the ambient temperature. * call to check on Colleen: 3:29 -> waiting to see whether catheter is in the right place; 4:40 6:05 7:35 -> contrast mri to see if urine leaking through fistula. They'll send her home in an ambulance -- which I will presumably pay for out of pocket 10:20 -> being transferred to UW % lower back pain. both sides but mostly right. meloxicam with evening drugs * */1 CPAP: change nosepiece, change paper filter, wash tub 0703Sa * Up 6:05; S=7:04; / call 8:09: she'll be transferred, preferably to UW but actually anyplace with a urology department, as soon as a bed opens up call 11:02: all nurses busy, will (supposedly) call back & 12:30 drove up to visit; packed tablet, charging pad, purple cape, and a Cheshire cat. : apparently the hospital's WiFi still recognizes me. Didn't show me a splash page. / no appetite, sounds weak. Monitor says AFIB, but that's not new. lower abdominal pain. BP seems low. & left ~2:40pm; called V % feeling unaccountably miserable. * guitar (and humming): Mother I Climbed, Ship of Stone / call 6:20, still waiting for UW to call back - that's their best shot. * singing: Ship of Stone & went back to see Colleen ~8pm; left at 9:30. / seems very weak; nothing in bag; BP stil low; white count high
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