Waking-up is the first miracle of the day.
The rain is drumming, constant and hypnotic; the clouds trying, in vain, to hold back the dawn. The world outside my window is a painting of horizontal brush-strokes...the pointy black of the tree line below layers of steel-blue, pewter and indigo. The sky moves steadily to the northeast, with an occasional tear that shows a lighter silver above.
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An initial course of oral antibiotics we made the doc give her (Lyme testing is notorious for its woeful innadequacy and false negatives) put her into a sort of remission, during which time she moved out and got married. The remission didn't last and, with no support from a woefully ignorant medical system, her condition worsened.
Just over four years ago she had to move back in with us so that I could take care of her full-time. The husband was not strong enough and is gone. We've gone through nightmares...comrades-in-arms...fang and claw...and we've been gifted with so much between us in the struggle.
Lyme is a silent plague in N. America...and the Infectious Disease Society of America is pissing in the corners for their territorial rights (and money) to deny the existence of the disease in chronic form. If we don't have a test for it...there is no disease, head-up-the-arse thinking.
If you can imagine...taking your kid (I don't care how old...when they hurt, they're your kid) in a wheelchair, unable to walk more than a few stumbling steps, with every system of their body (including brain) affected...imagine taking your kid like this to the doc...and with a sneer, they suggest it's all made-up because we don't have lives...oh, but let me write you ten-thousand prescriptions for life-long maintenance of symptoms...imagine how primal you might feel...but know that to lose your cool is to have them think they are even more right. Do this for years...with over fifty doctors...with no full nights' sleep...and you can understand the pain, tiredness and frustration of hundreds of thousands of families who live with the reality of chronic Lyme.
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I watched a documentary about Lyme disease not too long ago...and have had to deal with doctor's thinking I was having psychosomatic seizures, so I know where you are coming from.
Thank gawd Willo's got a Mom like you!! I'm nominating you for Sainthood!!
:-)
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ROTFLMAO!!!!
Actions, my dear, speak waaaaaaaaaaaaaay louder then words...even swear words. Besides, we can always make you the Patron Saint of Pottymouths!! hehehe
;-)
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Mystical Motherly Saint of Mastubatory Mots!!
I think I've hung out with male musicians too long!
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