Sep 19, 2009 10:03
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Ehlers Danlos, Hypermobility Type
2. I was diagnosed with it in the year: 2003
3. But I had symptoms since:I can remember
4. The biggest adjustment I’ve had to make is: Set limits on myself.
5. Most people assume: I'm clumsy.
6. The hardest part about mornings are: Whether or not my feet will work.
7. My favorite medical TV show is: CSI, yes it's a medical show.
8. A gadget I couldn’t live without is: iPod
9. The hardest part about nights are: I don't want to sleep.
10. Each day I take _3_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: Highly recommend reflexology and acupressure.
12. If I had to choose between an invisible illness or visible I would choose: Invisible.
13. Regarding working and career: Airline travel becoming much harder - using overhead bins only results in dislocations.
14. People would be surprised to know: That it's National Invisible Illness Week.
15. The hardest thing to accept about my new reality has been: Limits
16. Something I never thought I could do with my illness that I did was: Sprain my neck while sleeping.
17. The commercials about my illness: Don't exist.
18. Something I really miss doing since I was diagnosed is: Diagnosis didn't change much for me.
19. It was really hard to have to give up: Soccer, years ago.
20. A new hobby I have taken up since my diagnosis is: See #18.
21. If I could have one day of feeling normal again I would: Not know what to do with myself.
22. My illness has taught me: Tolerance.
23. Want to know a secret? One thing people say that gets under my skin is: 'How are you feeling today?' (particularly if I'm having to wear splint/brace/etc)
24. But I love it when people: Ignore my clumsiness.
25. My favorite motto, scripture, quote that gets me through tough times is: I will win.
26. When someone is diagnosed I’d like to tell them: Believe yourself more than others.
27. Something that has surprised me about living with an illness is: How often people assume I want their attention.
28. The nicest thing someone did for me when I wasn’t feeling well was: Not ask why.
29. I’m involved with Invisible Illness Week because: I have employees for whom this matters a great deal.
30. The fact that you read this list makes me feel: That you're probably bored today :)