Better now
I actually took some of your advice, sort of. We called Crystal, Mom's social worker today, and she came over and talked to us this afternoon. A hospice worker had called earlier, and they are still coming tomorrow to talk to us. Crystal says she can get an aide in here more often, and for longer, for now, to give me a break. She told Mom to talk to the hospice people tomorrow, and if she wants to go with increased aide care, or hospice, whichever, she'll get it going.
Mom told Crystal her concerns - - mainly that she won't be able to see Dr Fernando anymore(neither I nor Crystal apparently had the heart to point out that the reason he told her she needed hospice was because he can't do anything else for her), that she won't be in charge of her own meds, and whether or not she'll still be able to get the Tarceva. Crystal told her part of the reason for hospice was to help manage pain, but I think that's more of a control issue with Mom. She also told us she didn't really know about the Tarceva, so that'll be a question for the hospice people tomorrow.
I made the point that I really need a break - - Mom seemed to think I meant an hour here or there, but Crystal got what I was saying, and that's when she suggested giving me a whole day when I need it.
And Crystal also made it clear that if we decide against hospice for now, it's still an option when we *do* need it.
So maybe this is something we can both live with. Now if I could just get Mom on a schedule as far as sleeping. I tell you, when Crystal arrived today, I was in a bad way. Mom got up at 5am when J left for work. Before I went back to bed, I got her Diet Coke and meds and asked if she needed the bathroom. She said no. I went back to bed, but didn't sleep well - - I woke up with every noise, and I could swear I heard Mom walking around a couple of times. She says no, but when I got back up, she still didn't need the bathroom, and didn't go until nearly 12.
So, I'm better now, and we'll see how this goes. Thanks to all of you - - you always make me feel better, and I love all of you so much.
Mom told Crystal her concerns - - mainly that she won't be able to see Dr Fernando anymore(neither I nor Crystal apparently had the heart to point out that the reason he told her she needed hospice was because he can't do anything else for her), that she won't be in charge of her own meds, and whether or not she'll still be able to get the Tarceva. Crystal told her part of the reason for hospice was to help manage pain, but I think that's more of a control issue with Mom. She also told us she didn't really know about the Tarceva, so that'll be a question for the hospice people tomorrow.
I made the point that I really need a break - - Mom seemed to think I meant an hour here or there, but Crystal got what I was saying, and that's when she suggested giving me a whole day when I need it.
And Crystal also made it clear that if we decide against hospice for now, it's still an option when we *do* need it.
So maybe this is something we can both live with. Now if I could just get Mom on a schedule as far as sleeping. I tell you, when Crystal arrived today, I was in a bad way. Mom got up at 5am when J left for work. Before I went back to bed, I got her Diet Coke and meds and asked if she needed the bathroom. She said no. I went back to bed, but didn't sleep well - - I woke up with every noise, and I could swear I heard Mom walking around a couple of times. She says no, but when I got back up, she still didn't need the bathroom, and didn't go until nearly 12.
So, I'm better now, and we'll see how this goes. Thanks to all of you - - you always make me feel better, and I love all of you so much.