(no subject)
Hey all. I'm still in the hospital.
Had two surgical procedures so far, one one of which was a port replacement. Hello, port-a-cath number 3.
I'm on the lung transplant waiting list.
I made it to 28 years and two weeks before I was listed.
Kudos to me for that.
Cheers for 28 years and two weeks.
We are currently waiting to see if I can get well enough to not need an urgent transplant from living donors [one lobe each] but wait for a regular cadaver donor lung transplant. I am breathing with the aid of a B-PAP machine both night and day and the idea is to have me being able to breathe on my own [with oxygen] during the day - then it means I can wait.
I'm still very weak and with very limited internet access, and can't talk on the phone, so sorry for staying out of touch.I'm reading all SMSs, thanks for sending them.
I can't believe I was/am this close to dying.
This is taking ages to write.
This is all very scary.
Had two surgical procedures so far, one one of which was a port replacement. Hello, port-a-cath number 3.
I'm on the lung transplant waiting list.
I made it to 28 years and two weeks before I was listed.
Kudos to me for that.
Cheers for 28 years and two weeks.
We are currently waiting to see if I can get well enough to not need an urgent transplant from living donors [one lobe each] but wait for a regular cadaver donor lung transplant. I am breathing with the aid of a B-PAP machine both night and day and the idea is to have me being able to breathe on my own [with oxygen] during the day - then it means I can wait.
I'm still very weak and with very limited internet access, and can't talk on the phone, so sorry for staying out of touch.I'm reading all SMSs, thanks for sending them.
I can't believe I was/am this close to dying.
This is taking ages to write.
This is all very scary.