(no subject)
Had CF check-ups yesterday.
Weight - up 1.1 kilograms and am now at 41.8 kilos [fully clothed, no shoes, after breakfast]. Woo-hoo! That's much better than the previous number =) Also L the nutritionist asked me if I'd be game for nightly IV (intravenous) feedings, if that's an option we could pursue in my case, and I said I'd go for it; she said she'll talk to gastro and tell them of my case and see if that's a viable option and if we could do that through my port-a-cath. I refuse to get a gastric feeding tube until I'm end stage/waiting for a transplant, but I could try the IV thing. Obviously nightly feedings will be a hassle, but if that's something that could be done, I will grab onto it. I mean, I have not been getting my period again as I've been under 42 kilos for a few months now - that's just fucked up. I'm holding my fingers crossed for IV nutrition.
Lungs - down to 37% [43 a month ago]. I'm on maximal treatment orally/nebulized as is, so I have check-ups again in 3 weeks [on the 29th! Not on my birthday! Yay!] and if it's not better, IV antibiotics.
And it seems that I've caught a cold yesterday. How ironic. I really, really need this one to NOT go into my lungs. I need pneumonia now like I need a zit on my arse, pardon the picturesque grossness.
Weight - up 1.1 kilograms and am now at 41.8 kilos [fully clothed, no shoes, after breakfast]. Woo-hoo! That's much better than the previous number =) Also L the nutritionist asked me if I'd be game for nightly IV (intravenous) feedings, if that's an option we could pursue in my case, and I said I'd go for it; she said she'll talk to gastro and tell them of my case and see if that's a viable option and if we could do that through my port-a-cath. I refuse to get a gastric feeding tube until I'm end stage/waiting for a transplant, but I could try the IV thing. Obviously nightly feedings will be a hassle, but if that's something that could be done, I will grab onto it. I mean, I have not been getting my period again as I've been under 42 kilos for a few months now - that's just fucked up. I'm holding my fingers crossed for IV nutrition.
Lungs - down to 37% [43 a month ago]. I'm on maximal treatment orally/nebulized as is, so I have check-ups again in 3 weeks [on the 29th! Not on my birthday! Yay!] and if it's not better, IV antibiotics.
And it seems that I've caught a cold yesterday. How ironic. I really, really need this one to NOT go into my lungs. I need pneumonia now like I need a zit on my arse, pardon the picturesque grossness.