Sep 22, 2009 17:19
I spoke with another person who had Wegener's Granulomatosis for 15 years since she was 15 years old. She told me she lost one of her eyes 5 years ago due to ganuloma formation within her eye, and her nose cartilage collapsed due to perforations caused by granulomas. She now lives with ane eye-patch, and is awaiting reconstructive surgery for her nose.
What's interesting is that all this happened 10 years into her illness, and I've only lived with this condition for 2 1/2 years! That means I still have the possibility of being able to have a reason for wearing an eye patch! Whoa! Wouldn't that be awesome.
Losing depth-perception will suck, but technology that auguments lost eyesight is improving very rapidly these days, such as a sensor you can bite that sends electrical signals to your tongue, which allows you to vageuly see things. I've also heard of a "tooth camera" which directly connects to your ocular nerve or something. Either that or I can put a cool fake eye into my empty eye socket... or a USB connector.