Wanted to give everyone an update on how mom is doing. She had her surgery back in the beginning of December. It ended up being almost 12hrs long and went well.  The surgeons had to do a lot more than expected. Since it was such a long surgery on the abdominal region, they decided to wait to remove the affected lymph nodes later, in a second ( Read more... )

I got angry and lit fires at the hospital last week. The hospital originally planned to just release mom once again after barely doing the minimum to stabilize her and not give any additional aftercare. Just go home and resume what you were doing.  She had only just barely started eating solid food again and they still had her on IV fluids.  I ( Read more... )

I'm not sure where to even begin with how this year has run our family, and everyone I know, through the wringer, repeatedly.  We're trying to make the best of it all and take things one day at a time ( Read more... )

Still alive.  Been really sick on and off multiple times with flairups, including falls and passing out. Started as soon as the temperatures began to get warmer outside.  Been borderline heat stroke every day since. Can't get anything done because I overheat too easy, even inside with the AC running full blast. The little energy I have has been ( Read more... )

I have been pretty sick since last time I updated. I started physical therapy again the week before it hit really bad. It's a flairup caused from over exerting myself, and amplified by the weird changes in the weather here.  Haven't been sleeping well to begin with, so getting up to tend to puppy stuff wasn't as much an issue.  It got bad enough ( Read more... )

I have been dragging through the past two months or so with a Sjögren's flair up. I get them regularly and stress and weather conditions, alongside complications from my Ehlers-Danlos and other conditions, can make them worse.

Been having a horrible time with my tooth and jaw issues.  The nerve pain has gotten so bad I have had to increase the ( Read more... )

Apologies for the recent radio silence. Been having a real rough go at it the past week or so. My teeth/jaws have gotten worse and the changing weather makes them flair real bad. The nerve pain I get from it is overwhelming.  My Gaba meds just manage to take the edge off. But then breakthrough pain hits and I take more Gaba to beat it back. Once ( Read more... )

Disability Stuff
This month is flying by. Have had so much going on with finalizing my filing with the SSA.  A few aggravations along the way, but those were made up for by going in to drop off paperwork for SSDI and unexpectedly getting to apply for SSI without needing an appointment as I originally thought I would.  Everything sort of fell into ( Read more... )

So. Much. Pain.  I somehow managed to hurt my back over a week ago and could hardly move when it first happened. After a few days of TENSing, pain creams, Gaba, and resting and hobbling in crazy ways to stay comfortable, it finally felt a little better yesterday. Then today I had to go to the dentist. And it hurt, a lot. The numbing agent they use ( Read more... )

I have been a little scarce recently. Taking care of medical related stuff.  I am finalizing my Disability/Medicaid application process next week.  I will be going in person with faithful Ember at my side to present my 3inch+ thick folder of medical records and documents, letters of support ( thanks again to those who wrote them ), and fully ( Read more... )