On Life And Dental Emergency Stuff

May 19, 2020 19:51

Checking in again. Trying to be better about doing it and write more regularly. But don't want to burden anyone with any more negativity than already exists in the world, so I don't talk about half the stuff that does happen.

Still pretty raw and numb over losing both my Aunt and Ember. It has been rough, for the lose itself, and the millions of complications each loss created. Finally managed to get a box of tissues from the store and had a good long and hard cry. Trying to cry a less and not feel sad when I remember.  Trying to celebrate them and remember all the happy times. Tried not to cry while writing this - didn't succeed.

Otherwise not much has changed for us, despite the world gone crazy. Mike working from home and me disabled and staying home majority of the time, we already tried to avoid going out in public much before the outbreak.  Only problem was the increased difficulty of getting anything we ordered online or for store pickups, which we regularly used before everyone started doing it. At first everything was out of stock everywhere. I think the stores are starting to catch up to some degree. but it still sometimes takes multiple orders to snag everything we need, especially the most in demand products.

Been having trouble with my broken teeth and jaws again. It has gotten pretty bad, and I discovered that no one around here accepts the adult Medicaid I have. Not even regular dentists. So I literally would have to go 3hrs+ for any dental treatments of any sort, for it to be covered and not have to pay out of pocket. That is absolutely insane and unacceptable.  Why is dental care not considered as important and part of medical?  Sorry you don't have any teeth or can't eat anything, sucks to be you!  Being able to eat and have healthy jaw structure to easily speak and perform other daily activities, nope, not an important quality of life factor at all.  That seriously needs to change.

I have been miserable for 5yrs + trying to get my dental and jaw issues fixed, just getting worse over time. The pain has been so unbearable at times, I have been suicidal. So many times I literally thought about taking a pair of my jewelry pliers and scalpel to pull them myself. Just to make the pain stop. The amount of pain and related side effects I endure from the numerous exposed nerves and broken teeth, amplified by my neurological and pain sensory disorders, has left me unable to function a majority of the time, even with nerve blockers and pain meds.

I am not sharing this to upset anyone or make anyone feel bad. Just that I think people should be aware things like this happen to others and are not widely recognized like they should be. Until they are, the system will not be forced to change. No one should be forced to live this way, for years, just because they can't afford proper treatment.

These providers shouldn't be able to get away with denying someone care just because they don't want to accept Medicaid. Especially in an emergency situation like mine, with abscessing, infected teeth. People on Medicaid are normally the most vulnerable and at risk, many with little or no income, who desperately need help and like with my own situation, try as they might to improve their life situations, constantly get screwed by the system. It is disgusting and makes my blood boil in a rage I cannot properly express in words.

Anyway, enough of that. I hope that all of my friends out there are safe and well during these strange times.  Please continue to stay safe in the "better safe than sorry" sense.  Wash hands, wear gloves and masks, and treat it seriously. You might not be effected by it. But people like myself, my mother who is having cancer treatment, and my grandmother who is in her 90s are at a higher risk.  People like us could get it because someone else was selfish and careless thinking everything is "back to normal".  So just be smart and cautious and considerate of other people, and encourage everyone you know to do the same, so we can all get through this as safely as possible.

disability, medicaid, ehlers danlos, ehlers-danlos, pain, medical stuff, general, medical issues

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