sore and stiff
well today im still very sore and stiff all over.....its just part of living with lupus.
I have done so much reading on the subject and all have said diet is very important....certain foods,drinks and spices can all trigger bad flare ups which are really painful......so far i have cut out sodas,red meats,bread....most of the things i used to eat just get me nauseas anyways...i have been eating lots of veggies and drinking lots of water as far as meats go chicken and fish are the best for me to be eating.
I have been drinking water like crazy.....and getting sleep when my body says your tired get to sleep.....in sept the doctor is going to do some biopsies to determine what kind of lupus it is i had no idea there were so many varieties......they also mentioned about getting steroid shots to keep the symptoms from getting really overpowering.
Talked to my aunt whom i havent talked to in almost 20 years...she has lupus and it took her doctors almost a year before she was fully diagnosed...we have the same symptoms and she just let me know to do my research on the internet....before she was diagnosed she ended up in a wheelchair for a while cuz the pain in joints got so bad she was either bedriiden or could only get around in a chair......i cant let that happen to me too many things i gotta do......she said its very important to eat right and eat foods that agree with my body and get lots of rest...take breaks at work and know what my limitations are.....flare ups wont be that bad if i do this.
Its good to know that im not alone with this and she said i can call her anytime with questions or just to vent.....she has done ok with the steroid injections and has had little discomfort....right now hers is in remission it has been for 6 months now.
i checked my weight from what they had taken at the emergency room and it went from 185 to 160 so i have lost alot of weight and fast just because most foods get me nauseated or i cant keep most foods down......vali had to buy me new pants for work cuz the size i used to wear just fell off me....went from a size 36 to a size 32 i feel good about that but not for the pain i had to endure during it.....i have to psych myself up most days to get through the days at work and at home....i dont have the strenghth to do much but sleep.
hopefully everyone understands.....i used to be soo active and do alot of things at home and at work but now im always too tired or my hands,legs and other areas and joints hurt too much to move and do things......i have been getting vali to go for walks to keep my legs and arms flexable cuz i dont wanna end up having to use a walker or wheelchair.
well i just have to take one day at a time.
I have done so much reading on the subject and all have said diet is very important....certain foods,drinks and spices can all trigger bad flare ups which are really painful......so far i have cut out sodas,red meats,bread....most of the things i used to eat just get me nauseas anyways...i have been eating lots of veggies and drinking lots of water as far as meats go chicken and fish are the best for me to be eating.
I have been drinking water like crazy.....and getting sleep when my body says your tired get to sleep.....in sept the doctor is going to do some biopsies to determine what kind of lupus it is i had no idea there were so many varieties......they also mentioned about getting steroid shots to keep the symptoms from getting really overpowering.
Talked to my aunt whom i havent talked to in almost 20 years...she has lupus and it took her doctors almost a year before she was fully diagnosed...we have the same symptoms and she just let me know to do my research on the internet....before she was diagnosed she ended up in a wheelchair for a while cuz the pain in joints got so bad she was either bedriiden or could only get around in a chair......i cant let that happen to me too many things i gotta do......she said its very important to eat right and eat foods that agree with my body and get lots of rest...take breaks at work and know what my limitations are.....flare ups wont be that bad if i do this.
Its good to know that im not alone with this and she said i can call her anytime with questions or just to vent.....she has done ok with the steroid injections and has had little discomfort....right now hers is in remission it has been for 6 months now.
i checked my weight from what they had taken at the emergency room and it went from 185 to 160 so i have lost alot of weight and fast just because most foods get me nauseated or i cant keep most foods down......vali had to buy me new pants for work cuz the size i used to wear just fell off me....went from a size 36 to a size 32 i feel good about that but not for the pain i had to endure during it.....i have to psych myself up most days to get through the days at work and at home....i dont have the strenghth to do much but sleep.
hopefully everyone understands.....i used to be soo active and do alot of things at home and at work but now im always too tired or my hands,legs and other areas and joints hurt too much to move and do things......i have been getting vali to go for walks to keep my legs and arms flexable cuz i dont wanna end up having to use a walker or wheelchair.
well i just have to take one day at a time.